Any testimonies where cancer didn't return?

Posted by Rom828 @jgallagher04921, Jun 4, 2023

I am new to this support group ( few weeks), but from what I have read there seems to be a trend with cancer coming back ( with all different diagnosis and treatment types). As I am still in the process of deciding on treatment, I'm starting to wonder " why bother going through all the side effects and feel ugly in the process if she-devil is just going to return".

Is there anyone out there that can speak to their win of cancer not coming back. What was ur diagnosis and treatment plan.. how long has it been since u were diagnosed?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@luckbme

My oncologist told me he could guarantee the invasive duct cancer would come back in two years if I chose not to take it. He said I'd get five years if I took it. So I am trying it. Was very miserable with side effects so we are trying every other day (10mg). He said 82% of these patients get five years.

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Hello @luckbme ,what a great name you chose. Welcome to connect. Although I disagree that your doctor could guarantee anything, I do believe we have some pretty good indicators of prognosis these days.
You said you are trying 10ng every other day, how is that going for you.
There are a lot of members in the breast cancer group who have been hanging around a long time. I have had relapse but I am still here to talk about my original diagnosis 20 years ago.
Please feel free to scroll up, hit breast cancer at the top and join in any conversation you like. There are some where you can get ideas to help with some of those side effects. I am glad you are here.
How long since your diagnosis?

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End of January I was diagnosed. Lumpectomy Feb 5, or around there. Started radiation March 31st for 15 treatments 3 weeks in a row. This team treating me has an oncologist, surgeon and radiologist. I do not have as much faith as I should in my oncologist. He's very narrow minded toward tamoxifen, and speaks very definitely. I need to tell him about this site. I just started every other day. Saturday was my first day of not taking the pill and for the first time in weeks I felt normal. I can even say that afternoon and evening I felt really good. So today, Sunday I took the pill again at 1pm. My alarm is set or I'd forget too easily. I will do every other day for this week and see how it goes. I'm 86 years old and 125 pounds. I don't plan to do a treatment that is worse than the disease.

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@windyshores

People are going to post if their cancer came back. Most will not be on the forum or posting if their cancer did not come back. It does give a skewed perspective though of course all posters are helpful.

I was diagnosed 8 1/2 years ago. Grade 2 or 3 (depending on the lab), lymphovascular invasion, highish ki67%, but low Oncotype probably because my ER was 95% and PR 80%. I had two mastectomies and did an aromatase inhibitor. No chemo, no radiation.

The aromatase inhibitors cut risk approximately by half. I never even considered not taking them. Side effects weren't bad but you have to watch your bone density.

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Hello!
Congratulations on 8 1/2 years.
May I ask why two mastectomies?
Low oncotype related to high Er/Pr - I was unaware.

My onco score 4
Ki 67 20% - is 20% considered high?

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@jgallagher04921

Yes, I thought for sure at least nausea. I have such anxiety over " when symptoms will start though" .

44, Invasive Lobular Carcinoma, ER/Pr +, HER -, double mastectomy, no lymph node involvement, Oncotype 6 so no chemo, no radiation.

Tamoxifen for 10 years, Lypron shot in ovaries for 5 years ( but will be having ovaries out in Aug instead)

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Hello
You indicate no chemo or radiation due to Onco 6.
The Onco score also determined the no radiation?

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27 years next month. Breast cancer (double negative)
6 rounds chemo, 35 radiation treatments.
I was 50

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@windyshores

@rom828 I did not know you were premenopausal. Do your doctors recommend one or the other? The Oncotype score and risk of recurrence depend on taking Tamoxifen and I was told that an AI was slightly better, but for someone who is 43 I would rely on your docs, and get other opinions until you feel sure. I was not scared at all about Tamoxifen. At 63, I was prescribed an AI and usually people take Reclast with it for bones. I had a very individual problem in that my endocrinologist would not prescribe it due to a heart condition that has now been proven to not be a problem with Reclast. I caught up my bone density with Tymlos after letrozole finished. I thought most women your age would be taking tamoxifen. Is there a reason your docs recommended an AI? I am curious because my impression may have been mistaken.

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@rom828 I was also 43 when I was diagnosed. My treatment includes an aromatase inhibitor (AI) combined with Goserelin to induce menopause. The purpose of this approach is twofold: Goserelin suppresses ovarian function to reduce estrogen production, and the AI blocks the aromatase enzyme, which converts other hormones into estrogen.

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IDC ER/PR+ HER- 6mm lumpectomy, sentinal node 2 lymphs take out, no node involvement, 5 courses of radiation (no side effects)! 2 years clear. Not taking any meds.
🙏😌👍🏻 Perimenopausal, age 55 now, (Diagnosed in 2023)!

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@gina5009

Thank you for your kind response. You are very wise, and I believe each of us must find their own path. Fortunately, I was quite young, and not very knowledgeable so my first thoughts were that I was going to die. My husband got up each morning before 5 a.m. to dress and go across town to pray for me before going to work. He did this for one solid year. I did not die by the second year, but I was having biopsy's for fibroid lumps, I had the second breast removed. When I reached the thrid year and did not have a recurrence I decided maybe I had a chance and decided to give the worry a rest and begin to live my life. Gradually, ever so slowly, life became more and more normal and here I am today. God had plans for me, I could not know or see like taking care of my mother for 10 years, raising two children, and caring for my husband for a very long time until he developed lung cancer from a Service Connected Disability, and now my son lives with me following his being hit by a car. Driver was on telephone and did not see him. So just know, we have no idea what God plans to do with us, and what your life becomes is not in your power to know. Just be glad for every day you are given, accept it with joy, and give this joy to as many other people as possible. You will be amazed at how wonderful your life has become.
Gina5009

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Gina5009,
There is no wonder why God wanted to keep you here with us. You're an inspiration to us all with your positivity and kindness. Thank you for being you.
Lisa 🌷

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@luckbme

End of January I was diagnosed. Lumpectomy Feb 5, or around there. Started radiation March 31st for 15 treatments 3 weeks in a row. This team treating me has an oncologist, surgeon and radiologist. I do not have as much faith as I should in my oncologist. He's very narrow minded toward tamoxifen, and speaks very definitely. I need to tell him about this site. I just started every other day. Saturday was my first day of not taking the pill and for the first time in weeks I felt normal. I can even say that afternoon and evening I felt really good. So today, Sunday I took the pill again at 1pm. My alarm is set or I'd forget too easily. I will do every other day for this week and see how it goes. I'm 86 years old and 125 pounds. I don't plan to do a treatment that is worse than the disease.

Jump to this post

I agree with your comment about the treatment being worse than the disease. My oncologist was also pushing Tamoxifen but I politely declined. Any lingering estrogen in my body is there for a reason and helps to support the skelital and muscular systems as well as the brain. It's been hard enough going off HRT. I suffer from major depressive disorder and anxiety and the removal of HRT has resulted in a real increase with these problems. They say "go talk to your shrink" but I've been seeing a psychiatrist and treated for depression for 30 years (tramatic childhood event leading to chronic depression) and have treatment resistent depression. I can't magine taking a drug that will remove any trace of estrogen in my body. I feel crummy enough! I read a l recommend the book "A Smart Woman's Guide to Cancer" by Emma Simmons. I have learned that doctors make recommendations and I am the ultimate decision maker. Only I can weigh the pros and cons of treatment and decide if the tradeoffs are worth it. "Something" is going to end each of our lives someday, so I want to live each day to the fullest and that's more important to me than "killing cancer at all costs." But not everyone has that viewpoint. . . .

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@auntieoakley

Hello @luckbme ,what a great name you chose. Welcome to connect. Although I disagree that your doctor could guarantee anything, I do believe we have some pretty good indicators of prognosis these days.
You said you are trying 10ng every other day, how is that going for you.
There are a lot of members in the breast cancer group who have been hanging around a long time. I have had relapse but I am still here to talk about my original diagnosis 20 years ago.
Please feel free to scroll up, hit breast cancer at the top and join in any conversation you like. There are some where you can get ideas to help with some of those side effects. I am glad you are here.
How long since your diagnosis?

Jump to this post

Some Drs are stupid jerks.
They should all have training in being humans, learn how to tell the possibilities and then give positive encouragement.
i had good prognosis but none could say they thought i would be ok, protocol? my old pcp told me i was not in high risk group because my mom, sisters granny and kids didn’t have BC. i have 4 aunts 4 1st cousins with it and she acted like i was stupid because i thought i had risk with all these relatives getting it. I had a rash on my breast and she wouldn’t help me to get an appt for mamogram it was not her dept. when 9 mo later i finally got the test, she called me on the phone the next day to say i had cancer and do i want to go the next day to see the drs at the breast cancer meeting or did i have something else to do? You have cancer but maybe you could rather have lunch with your friends or go shopping. no common sence, she needs some Bachi.

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