← Return to Cutaneous T-cell lymphoma consistent with mycosis fungoides

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@nani2025

I am new to this forum, saw your post & will share my experience. I have been dealing with CTCL manifesting as CD30+ lymphoproliferative disorder and mycosis fungoides, diagnosed 9 years ago. Topical clobetesol has helped but during this time, I have needed cycles of methotrexate (mtx) up to 20mg. It resolved but does wax and wane and I am in another "flare." Restarted mtx so will see how it does. My doctor never suggested phototherapy. I hope this helps. Each person's journey is a little different. Best wishes to you.

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Replies to "I am new to this forum, saw your post & will share my experience. I have..."

Hi @nani2025. Welcome to Connect. Your experience with CTCL and what has worked for you to help control the symptoms is really valuable information for members like @lancasterva who are newly diagnosed. So thank you for sharing with us!
How long ago were you diagnosed with CTCL?