Anyone with LC 4 years

Posted by traceyf @traceyf, Jan 24 5:52am

I have been living with LONG COVID going on 4 years. The day I got my second vaccination, I was walking out of the place sideways, since that day, april14 was my second shot was fine with the first. I actually got covid october 2021 have lost all my energy. I cannot clean my house.I have an aid 30 hrs a week I run out of breath very quickly. I can't walk upstairs. I just turned 60 years old. And I never had any problems like this. I had a very active life went on vacation.all the time now, I don't even want to go out to dinner. It's too much of a hassle, it's a hassle. To take a shower I can't stand feeling sick anymore. I had to get someone to come in and clean my house. I moved into my apartment 3 years ago. And its still not unpacked, I can't do it. I am so down about having this vaccine. I didn't want it but my mother-in-law had cancer. So I got it to keep her safe. They have to come up with some kind of cure for this, because this is not living. I mean I know there are people that are bed-bound, I know there are people That had to quit their jobs. This is the most discouraging thing that has ever happened to me. I just can't take it anymore. My energy is at a 0 level. I see a therapist that does nothing for me But give me antidepressants and benzos . I go to my reg doctor, I request all kinds of tests he does.. They better come out with something soon. It's not fast enough for me. I have 3 grandchildren that I can't even watch because I'm too exhausted. I'm gaining weight like crazy. My hair's falling out my teeth. Went too garbage?My skin is so dry it feels digusting So now I have dentures. I have headaches, I have muscle aches.Diagnosed with fibromyalgia hashimotos ibs sjogrens empty seller syndrome hypothroidism fatty liver gallbladder removed. I've been diagnosed with hydrentitus supertiva . I had some kind of crazy Vasil, vagel heart problem. And was in the hospital, 2 weeks with what I thought was a heart attack. Then I was told it was a vazo vagal attack, never heard of it plus there was tropenine in my blood, which usually only happens when there is a problem with the heart. I'm sorry, this is so long. I'm frustrated. I have no faith in any doctors..at all anymore..they knew it was bad..I wish NY could sue Pfizer. I will not even getva flu shot..My trust in Drs is gone. Please tell me what you guys are going through. Because I feel so alone. Everybody in my family doesn't even understand they think I'm just lazy because its on the inside..if they cant see it..its not there, and it's the furthest thing from the truth. My head wants to do a million things, but my body will not follow. Thanks for listening Tracey

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krystalm | @krystalm | Apr 29 11:21am

4 years now and still feel like it's day one of getting sick with covid. No relief period no matter what meds tried, sleep is horrible and more and more symptoms keep coming.
I truly feel like it's not going away as if it's slowly breaking down our bodies.
I'm so exhausted and no luck with any dr's in my area

soonergal | @soonergal | May 18 4:43pm

I feel like you and I are living very similar lives. I’m not in the right frame of mind to give all the details right now but I am thankful to have found you Tracey. My name is Rhonda, I’m in Oklahoma. I’m also 60, will be 61 in September. I would love to se New York someday. In my mind, oh the things I would do and see. Anywho, I will be back to tell you more if my story and how we are alike and we can share war stories and hopefully feel not so alone. Like I said, grateful to have come upon your distress call.

cinderolla | @cinderolla | May 19 9:50am

Thanks for sharing your experiences as I too have been suffering with this for about 4 years as well. I had to get two shots plus booster in order to keep my job. At the time I thought it was the right thing to do. At the time I had faith in science and doctors. I started going to the doctor for diarrhea….it lasted 3 years despite being on medication and somehow it just stopped thankfully. I have about 20+symptoms I attempt to manage with the fatigue, brain fog and shortness of breath being the worst. It’s difficult as it is invisible and people don’t understand the complexities with this life altering illness. What I find difficult is doubt of myself - I sometimes wonder if I’m making this up because there is no official test to have a diagnosis and few seem to want to even discuss this. I do all the tests and everyone says you’re fine. I can’t do anything I used to do and have to carefully plan each day to manage the anxiety, energy, pain and fatigue. Some days I feel so depressed as I look outside and see the sunshine and think about all the things like yard work, biking, running, paddle boarding - I can only choose one activity now and no more than an hour because the rest of the day I’ll be in bed. The only thing that has helped is cannabis. Cannabis is not a cure but relieves every symptom as well as improves your mood to be able to cope. I am 53 and considering looking into long term disability however without an official diagnosis that may prove difficult. So, I try my best to still do things I love, set firm boundaries with work and ask for accommodations, and eat my cannabis gummies.

friedrich | @friedrich | May 19 11:27am

In reply to @colleenyoung "@uget1shot, several members here have discussed central sensitization syndrome and the principles of treating CSS have..." + (show)

To colleenyoung—

Thank you for the link to the informational video on Central Sensitization Syndrome (CSS). This presentation by Dr. Sletten of Mayo Clinic is remarkably articulate and well-organized.

I think this video would be helpful to many longhaulers who report having many symptoms at one time, without a discernible cause or effective treatment for them.

~ friedrich

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