They are still working on it. First yes, then no.
We leave for a Rhine cruise with husband having a drainage tube, nephostomy, in his back, no bag.
Anyway, more procedure and then chemo in May. It's been a long 18 months. But no info about effects of Jelmyto.
I just completed the six week of Jelmyto treatments for low grade urethane papillary urothelial carcinoma. I did not have any major side effects, after the 5 and 6 treatments I developed a very itchy rash mostly on my hands and feet, it was uncomfortable for 48 hrs and cleared completely after 5 days. Waiting to see the urologist in two weeks to find what is next. Not sure if the nephroureteral tube will be removed.
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Hi pcondon. Have you had any luck getting information about experience with Jelmyto?
My husband is supposed to start it in April. Thanks.
@slm189, might have experience with Jelmyto to share with you, Vicki.
@vickipm, was your husband able to start Jelmyto closer to home?
They are still working on it. First yes, then no.
We leave for a Rhine cruise with husband having a drainage tube, nephostomy, in his back, no bag.
Anyway, more procedure and then chemo in May. It's been a long 18 months. But no info about effects of Jelmyto.
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2 ReactionsI just completed the six week of Jelmyto treatments for low grade urethane papillary urothelial carcinoma. I did not have any major side effects, after the 5 and 6 treatments I developed a very itchy rash mostly on my hands and feet, it was uncomfortable for 48 hrs and cleared completely after 5 days. Waiting to see the urologist in two weeks to find what is next. Not sure if the nephroureteral tube will be removed.