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Adverse side effects from RA and biologic drugs?
Autoimmune Diseases | Last Active: Dec 23, 2016 | Replies (16)Comment receiving replies
Hello @chicagomichelle,
I'd like to add my welcome, too; thank you for sharing such an insightful movie about your experiences. I'm sorry that you are going through such pain, but glad that you are being an advocate for your own health.
Although prescribed for different symptoms, a few Connect members have discussed biologic drugs: @amy75, @jay_baruch, @thankful, @lorrainechavez, @sidepockets, @dancingwind, do you have any information or insight about biologic drugs for Michelle?
I would also encourage you to read this study, conducted by the Rheumatology division of Mayo Clinic, regarding TNF inhibitors:
http://bit.ly/2gXIhFR
@chicagomichelle, are you experiencing symptoms of drug intolerance? What have the doctors suggested?
Replies to "Hello @chicagomichelle, I'd like to add my welcome, too; thank you for sharing such an insightful..."
How do you start a new dialogue; I haVE A PULMONARY DISEASE THAT I BEING TREATED FOR @ MAYO AND WOULD LIKE TO START A DIALOGUE WITH OTHER PATIENTS WITH SAME?
Hi @bboxer, welcome to Connect. To find or start discussion about pulmonary issues and lung health, please go to the Lung Health group here: https://connect.mayoclinic.org/group/lung-conditions/
You can view all groups by clicking on DISCUSS > Groups in the navigation bar above.
For more tips on How to Get Started on Connect, see this page: https://connect.mayoclinic.org/get-started-on-connect/
Contact me if you have any questions: https://connect.mayoclinic.org/contact-a-community-moderator/
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Ugh! I just wrote a lengthy response which just went POOF and disappeared! Maybe it was just too long. In short, I do believe I have become drug intolerant due to the many that have been prescribed to me. I have been on all the standard pills as well as Enbrel, Orencia, Humira, Actemra and Xeljanz. I was misdiagnosed with RA and fibro in 2008 for the first 2.5 years of being sick, when in reality, I had torn both rotator cuffs in a beach accident (thrown to the shore by high waves) but never realized I was injured so badly (who gets majorly injured on a beach?) until 2.5 years later when I was on a patient web site and someone asked if I had ever hurt my shoulders. I've no doubt RA has set in after all these years. My relationship with my then doctor was complicated and became very personal, so when I should have let him go, I did not. That would finally happen in December of last year when he refused to treat my mouth sores and pain ("it will go away") and I realized then it was from the sjogrens he told me I had in 2010. He said it was "no big deal" and that I just needed disease modifying drugs. So much for DMD's. I would finally let this doctor go last December and have been flailing most of the year, desperately trying to get help, to no avail. Finally, I just went to Mayo as I could not stand it anymore. The biggest issue in the last few years taking DMD's was my knees, which would blow up like balloons. No one would treat this or even drain them, in spite of me begging them to. I would also be hospitalized once or twice a year as I would become practically paralyzed and could not lift my legs or arms. Mayo drained my knees and had me try one more drug, Arava, which basically did the same thing. I am a mess, but I remain hopeful that MC will help me get to the bottom of this and help me find relief from the near constant pain I live with.