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F T D Anyone know Frontal Temporal Dementia? Symptoms startiNow what?

Posted by kahyo @kahyo, Apr 18 5:18pm

I'm 66 yrs. I've had 3 MRIs, 1 CT , EKG, EEG, pending PET scan. (1 more test and I could play scrabble. ) #1 MRI ER Diagnosed with TIA and pronounced microvascular disease during a trip. They referred to a Neurologist when at home. #2 MRI They said FTD. #3 MRI. Frontal Temporal Dementia plus Seizures, Waiting for results.

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Allyn | @aoibhin | 2 days ago
In reply to @SusanEllen66 "@aoibhin I just looked for AFTD. All I saw was that it is FTD. CBS is..." + (show)
@SusanEllen66

@aoibhin
I just looked for AFTD. All I saw was that it is FTD.
CBS is as you said.

Yes, I joined AFTD.

I also recommend, http://www.daanow.org
DAA is for people with ANY TYPE of dementia. They hold Zoom meetings hosted and attended by people with dementia. They are throughout the week. Please check them out.

I have traits of FTLD according to my neurologist.

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Thank you!

I will check them out.

Although I have FTD, I don’t have dementia, as we of think it generally. My doctor doesn’t think I will get it. The “D” is for “degeneration”.

It is bad enough without dementia.

Wishing you the best 🌷

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1 reply
SusanEllen66 | @SusanEllen66 | 2 days ago
In reply to @aoibhin "Thank you! I will check them out. Although I have FTD, I don’t have dementia, as..." + (show)
@aoibhin

Thank you!

I will check them out.

Although I have FTD, I don’t have dementia, as we of think it generally. My doctor doesn’t think I will get it. The “D” is for “degeneration”.

It is bad enough without dementia.

Wishing you the best 🌷

Jump to this post

@Allyn I’m sorry you have it too.
My fear is the behavior or personality changes.
I don’t want to be out swearing, stealing, and having socially inappropriate behaviors.

I already suffer apathy and it’s driving me crazy.

Please do check out DAA. The Zoom meetings are a delight. We have themes to the meetings like “name that tune” and one where we discuss anything we wish to share.
If you join let me know so I can meet you during a meeting.

We are more than overcomers.

Blessings 🌵🌹

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1 reply
SusanEllen66 | @SusanEllen66 | 2 days ago
In reply to @dlydailyhope "@SusanEllen66 I really do feel for you. You have a lot to deal with and I..." + (show)
@dlydailyhope

@SusanEllen66
I really do feel for you. You have a lot to deal with and I totally get masking. My son’s father (my ex), has ADHD (late diagnosis), Autism (undiagnosed), and early onset Alzheimer’s (he is in denial but I see the signs like I did with his mother…now I know what to look for and notice differences). He is 60. His mother (my mother in law) had early onset Alzheimer’s probably in her 40s and 50s but no one noticed except for me so I encouraged her on getting evaluated. I was more of her caregiver than her son. I was exhausted because I worked 60+ hours a week and had a toddler/young child at the time with no family at all. I am currently 55 and my son is 15. I am his sole provider and the future is scary for sure. I have so many health issues and getting surgery (3rd) on my cervical spine next week.

Do you have family that can help you navigate through all of this change? Do you have a support system around you so you do not feel alone?

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@dlydailyhope
Oh my. We never know what others are going through if it’s not shared. Thank you for giving us a glimpse of your story. You surely have your plate full!

For me, I live alone. I have everything in order for now. I get my food delivered, the bank automatically takes care of my bills, and neighborhood volunteers drive me to my appointments. I buy my clothing online, Amazon, Walmart, and EBay ard my favorite sites.

I only have one son near by who stops by about every 2 weeks. He is not caretaker material. His personality is just not that of a caretaker.

In addition to dementia I have FND. It is causing so many physical problems that I have to use a walker, prisms in my glasses, and I can’t drive.

Thank you again for sharing a bit about yourself.
Blessings 🌷

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Allyn | @aoibhin | 4 hours ago
In reply to @SusanEllen66 "@Allyn I’m sorry you have it too. My fear is the behavior or personality changes. I..." + (show)
@SusanEllen66

@Allyn I’m sorry you have it too.
My fear is the behavior or personality changes.
I don’t want to be out swearing, stealing, and having socially inappropriate behaviors.

I already suffer apathy and it’s driving me crazy.

Please do check out DAA. The Zoom meetings are a delight. We have themes to the meetings like “name that tune” and one where we discuss anything we wish to share.
If you join let me know so I can meet you during a meeting.

We are more than overcomers.

Blessings 🌵🌹

Jump to this post

Thank you!

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