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← Return to New to Hydrea for ET
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Thank you so much for your comments. My hematologist really seems to think that starting me out on low-dose every other day is the best thing. She thinks the benefits outweigh the possible side effects. I’m just really nervous about all that I have read about this medication.
Replies to "Thank you so much for your comments. My hematologist really seems to think that starting me..."
Every one reacts uniquely.....I rather limit the risk of stroke or heart attack
I, too, was really nervous to start Hydrea because of the possible listed side effects and the fact that I’ll be taking it the rest of my life. I started taking Hydrea on March 4, 2025. As of this week my platelets are back in the normal range. I’ve been taking 1000 mg 3 days a week and 500 mg 4 days. I was especially worried about hair loss. As of now, I have no side effects from the drug for which I am very thankful. While some of my other blood numbers are off because of the Hydrea, white blood cell count is holding steady in normal range. I value this forum for insights on managing ET and I wish you good luck with your treatment.
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ET taxes our bone marrow and makes us vulnerable to blood clots and strokes. To me, using HU to reduce these risks is well worth it.
Experiment and find your best time of day for taking HU. Mornings? Evenings? Just avoid taking a capsule on an empty stomach.
Drinking lots of water is an especially good idea when we're on HU.
Did you know, HU also helps people with sickle cell anemia? It's been in wide use for a long time.