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New to Hydrea for ET

Blood Cancers & Disorders | Last Active: 10 hours ago | Replies (152)

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@janemc

While some people do have problems with Hydrea (also called HU), many of us do not.

For me, HU not just lowered my platelet count, it gave me back my energy. I take 1000 mg five days a week, 500 mg 2 days a week. I haven't had the slightest problem.

I do credit my oncologist for starting me on a very low dose at first -- originally, just 500 mg a week. That made adjusting to the medication easy.

Others on this forum have taken HU for decades! Whatever you're wondering about, you can get an answer here.

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Replies to "While some people do have problems with Hydrea (also called HU), many of us do not...."

Thank you so much for your comments. My hematologist really seems to think that starting me out on low-dose every other day is the best thing. She thinks the benefits outweigh the possible side effects. I’m just really nervous about all that I have read about this medication.