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Eosinophilic esophagitis: What treatment helps you?
I was prescribed Pulmacort for this stuff. Started taking it as prescribed despite it being not approved by Medicare or even in the USA, as I understand it. I can hardly get out of bed in the morning due to extreme soreness and pain in my shoulder and hip joints. I have a high tolerance for pain and am not a sissy. I can't work out, play golf or do just about anything. I have quit taking the stuff and hope pain will subside. Anyone out there have similar problem? By the way the price was outrageous but finally got it for $75 /month. Budesanide prescribed for dogs, cats and chickens costs about 5 bucks
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Three docs have suggested I have this. My diet is very limited. Have you changed your diet based on symptoms? Tried an elimination diet or at least eliminated gluten and dairy?
I am sensitive to chemicals in the air, new clothing etc. and was told my lung symptoms (burning pain, shortness of breath) after an exposure to, say, new carpets or paint, is actually esophageal. I have my doubts.
It sounds like you have had a biopsy. One thing that helps me is swallowing Flovent (normally inhaled) with a very small amount of water Of course the drug company stopped making it this past year. Budesonide works too.
Eosinophilic Esophagitis in a 79 year old male.
Has anyone had Eosinophilic Eosophagitis and how was it treated?
I have used Flovent- an inhaled steroid. Instead of inhaling it, I swallowed it with a small amount of water. I am now seeking another inhaled steroid because they stopped making Flovent. I also have a limited diet. I have not had a biopsy but 3 doctors have said that EE is what I probably have.
What were your symptoms? Did you have itching without hives on your body?
I’m a 29 year old female that was diagnosed with EoE last year. I’ve had 5 EGDs with dilations & biopsies in the last year. I can’t try the elimination diet because of another diagnosis that prevents me from doing so. I’ve tried PPIs (omeprazole) which didn’t work, tried Budesonide which didn’t work for me either. So, I started Dupixent about a month ago & will find out in July with another EGD & biopsies to see if it’s working to bring my eosinophil count down.
Hi,
I found out I have EoE last year. After trying Omeprazole and Budesonide with no luck at bringing the eosinophil count down, I just started Dupixent about a month ago to see if it works for me. So far the injections themselves have been going okay. I’ll find out in July, at my next EGD with biopsies, whether it’s helping bring my eosinophil count down. Did you decide on trying it?
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1 ReactionDupixent by Regeneron is the drug of choice at present. I have been taking it for newly approved use for COPD. Fewer side effects, but I'll wait and see what happens!