Main Duct-IPMN: Conflicted about what to do

Posted by skiball @skiball, May 15 2:08pm

I was found to have MD IPMN in 2013 incidental to a kidney stone CT scan.
Was not told about it until 2022 incidental to abcess of the diverticula. Since 2022 I have MRI's w/contrast and effectively no change since 2013, almost 12 years. Multiple varied second opinions. My primary GI doc thinks the Whipple is in my future. I am dilated to 8 mm. No symptoms at this point. Very conflicted as to what to do.

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Profile picture for ltg7622 @ltg7622

I have a Main Duct IPMN with dilation at 15mm and it is dispersed throughout. I’m told only treatment is a Total Pancreatectomy. At 73 I am choosing to monitor it with interval MRCPs. No symptoms. Any insights on experience would be welcome.

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How long ago did you find out about your IPMN and how was it discovered if you don't mind me asking.

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Profile picture for skiball @skiball

How long ago did you find out about your IPMN and how was it discovered if you don't mind me asking.

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October 2024 found during a cardiac PET scan and confirmed with MRCP and EUS FNA

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