What are your 3 worst symptoms?

Posted by gregorb @gregorb, 2 days ago

Trying to determine the 3 worst symptoms we are dealing with as a group.

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full body paresthesia, severe shoulder/neck/head pain, dizziness

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@roncovid

I have just had the blood drawn for Dr. Patterson's tests. It will be interesting to see how they categorize my illness.

One attribute of the distortion I get might be called sensory detachment or sensory disconnection. When the distortion is bad, I also often have dizziness or lightheadedness and I bump into things, drop things, etc. It's like I'm less aware of my surroundings.

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@roncovid well unfortunately we have a similar experience. The blood panel Dr Patterson runs was the first in 100s (including Mayo) over the prior 3 years that showed abnormalities. I was actually excited that someone finally found some things wrong. Another symptom I have is a sensation of rocking and was the very first thing I noticed ‘wrong’ and ‘uh-oh’. It’s not dizziness although some doctors class it that way.

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@vostie

Extreme inflammation causing painful joints that disrupt my sleep, fatigue, sporadic shortness of breath. LDN is helping with all of those and is creeping an inch better every week.

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I have 1mg, .5 mg, .25 mg. and .1 mg. compounded. I have tried every dose but the .1 mg. The doses I tried made me very tired. I took each one at 4:00PM and 7:00AM.
No other side effects. Vostie, could you tell me what you dose you started with and when do you take it. Did you experience any sleepiness? Thanks.

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@dhawker08

Shortness of breath, fatigue, and brain fog.

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Thanks for your info and reply.

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@sslariz

1) Inflammation- originally this presented as pain all over my body, and extreme sinus pressure, headaches - Now I still have chronic headaches that come and go. Seems related to barometric pressure. Allergies that I had which are mild are way worse - small exposure to mold can give me my main wierd symptom:
2) Headache, which is always experienced as sinus pressure accompanied by severe sleepiness. If I take a nap for an hour, the sleepiness goes away but the headache remains.
3) Weird joint inflammation /pain that comes and goes. Can resemble RA wrists, fingers, elbows, shoulders and neck all can become painful. especially hard to sleep when shoulders are in pain.

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Thanks for the reply. Yes. The inflammation seems to be some kind of key to long covid.

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@roncovid

I have just had the blood drawn for Dr. Patterson's tests. It will be interesting to see how they categorize my illness.

One attribute of the distortion I get might be called sensory detachment or sensory disconnection. When the distortion is bad, I also often have dizziness or lightheadedness and I bump into things, drop things, etc. It's like I'm less aware of my surroundings.

Jump to this post

Ron covid
Hope you get some helpful information you can use. Good luck.

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@mikesixtysix

full body paresthesia, severe shoulder/neck/head pain, dizziness

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Thanks for your helpful reply.

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@arichards3

@roncovid well unfortunately we have a similar experience. The blood panel Dr Patterson runs was the first in 100s (including Mayo) over the prior 3 years that showed abnormalities. I was actually excited that someone finally found some things wrong. Another symptom I have is a sensation of rocking and was the very first thing I noticed ‘wrong’ and ‘uh-oh’. It’s not dizziness although some doctors class it that way.

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Thanks for posting this arichards3.

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@mclelland1958

I have 1mg, .5 mg, .25 mg. and .1 mg. compounded. I have tried every dose but the .1 mg. The doses I tried made me very tired. I took each one at 4:00PM and 7:00AM.
No other side effects. Vostie, could you tell me what you dose you started with and when do you take it. Did you experience any sleepiness? Thanks.

Jump to this post

Thanks for your helpful posting. Best wishes and good luck

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@gregorb

Thanks for the reply. Yes. The inflammation seems to be some kind of key to long covid.

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@gregorb Vascular Inflammation is Dr. Patterson's working theory. It is the root cause of all of our symptoms.

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