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Hello @tab70 and welcome to Mayo Connect! I feel for your situation as I understand how difficult it is to get a correct diagnosis for neurological problems. Neurological issues have symptoms that overlap, and this makes it difficult for even trained doctors to figure out the right diagnosis and treatment.
I've also been diagnosed with PD, but a DAT scan did not show any problem. However, when I've tried to go off the medication, I have movement problems, so I continue with the Carbidopa/Levodopa medication to control my symptoms. There is also a skin biopsy test that is used to diagnose PD. If you are interested in that, you might discuss this with your doctor.
I agree with the post from @katrii that you have been through a lot, and please don't despair, but keep seeking answers!
Will you continue to post and let me know how you are doing?
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I appreciate everything you said your kinds words basically telling me not to give up . I’m really nervous about coming off of those meds.
I’m sorry to hear you have PD it’s not a fun thing to have that’s for sure . Did you have the skin biopsy to see if you had it since the Dat Scan did not show it?
I have alot of history of depression and wanting to die so I hope taking these meds don’t cause me to over react. I don’t need more stress as the tremors snd TD symptoms come back. I feel I need lots of prayers to get me through this!