What are your 3 worst symptoms?

Posted by gregorb @gregorb, 2 days ago

Trying to determine the 3 worst symptoms we are dealing with as a group.

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Extreme inflammation causing painful joints that disrupt my sleep, fatigue, sporadic shortness of breath. LDN is helping with all of those and is creeping an inch better every week.

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POTS because it causes my showers to create more fatigue than exercise, fatigue, lack of refreshing sleep.

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@vostie

Extreme inflammation causing painful joints that disrupt my sleep, fatigue, sporadic shortness of breath. LDN is helping with all of those and is creeping an inch better every week.

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Vostie
Yes. Inflammation is apparently such a big part of this illness. Sorry you have so bad as well as your other symptoms. Glad you are making some progress. Best wishes.

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@michael239

POTS because it causes my showers to create more fatigue than exercise, fatigue, lack of refreshing sleep.

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Michael239
Sorry. Hope they lessen. Good luck in the future and best wishes.

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@donlaujr

lung nodules, phlem , coughing

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Donlaujr.
Hope you see improvement soon. Good luck and best wishes.

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Daily headaches, on/off vertigo, consistent itchy shin rash (one-sided) for 2+ years.

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@gregorb

Vostie
Yes. Inflammation is apparently such a big part of this illness. Sorry you have so bad as well as your other symptoms. Glad you are making some progress. Best wishes.

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Thanks gregorb!

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Fatigue, fatigue and fatigue. I can deal with the rest. Sleep all night, have simple breakfast, need a 2-4 hour nap after.

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1. An awful feeling in my head that I call "distortion." I think it's connected with fatigue. It's not brainfog because I don't have any cognitive issues.

2. Fatigue / post-exertional malaise.

3. Dizziness.

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