What were your first signs of endometrial cancer?

Posted by Helen, Volunteer Mentor @naturegirl5, Jun 21, 2022

What symptoms did you have that led you to your physician before you received a diagnosis of endometrial cancer?

I had entered menopause more than a decade ago so menstruation was done. I discovered vaginal blood one morning. When it happened again a few days later I realized that something was going on but I didn't suspect cancer. I just knew this wasn't normal. I made an appointment with a gynecologist. Within a few weeks I began having cramps like I used to have when I first started my period as an adolescent. By then I was already under the care of the gynecologist who did a D&C and that's when the endometrial cancer was diagnosed.

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@jane

9 years post ovarian cancer and total hysterectomy/oophorectomy, and not having had a UTI since childhood, a slowly increasing pressure sensation on one side of my bladder was getting intense to the point it felt like a burning sensation on the OUTSIDE of the bladder when voiding. No bleeding. A little fullness in the lower part of the belly. Was starting to feel that starving, then sudden fullness after only a few bites, too. Had just finished signing papers to end a 33-year marriage and thought I may be getting an ulcer due to the circumstances. Went to see the GP who had been following me for almost 30 years, and he said it just didn't sound "normal" for me. Did the CA-125, the CT, the MRI, the ultrasound, the vag. ultrasound and when the results came back, they said a kidney was being pinched off by something which led to the surgery where they found cancer to be obstructing the ureter and stuck to the bladder and lining the lower right quadrant of my intestinal cavity. Needless to say, as with the ovarian cancer surgery 9 years previously, the laparoscopic surgery they had promised ended up in a full xyphoid to pubis incision (again!), along with waking up for the 2nd time in my life being told what they initially thought was benign was actually cancer. Great surgeon! 5 weeks of radiation and it's a blessing to be here!

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My goodness you were so lucky. I am 3 years post OvCa and had total hysterectomy with HIPEC. I live everyday on edge it is back. So heartening to hear you had 9 years before it returned.
What was your routine OvCa surveillance like at 8 years?
What was your CA125 value when your Doc ordered it for the bladder burning sensation?

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