PD Progression, stages and what to expect

Posted by dgalindo @dgalindo, Mar 31 8:33am

My dad is 82 yrs old PD diagnosed. He was doing well overall until a couple of weeks. This time around he is feeling very tired, week and barely can stand up or get out of bed. Any thoughts on what to do, what to expect? how to support him? is he heading to the point of no return?

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@hirschho

I have occasional double vision. My optometrist added a prism to my new prescription. I haven't used it yet.

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@hirschho,

I would enjoy hearing from you again after you use your new prescription with the prism. Is the prism in one lens or both?

Will you post an update and let me know how it is working for you?

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@hopeful33250

@jatonlouise

You have offered some great suggestions! The only one I would add is to find a form of physical exercise that you enjoy and exercise at least 5 times a week. It doesn't have to be hard, aerobic activity; however, chair yoga or chair Tai Chi are great for balance and help with stiffness. There are free YouTube exercise videos available that are great with seated exercises.

What are you most difficult PD symptoms right now?

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Apathy is my biggest problem at the moment. I am fortunate to have the l-dopa pump so I don't have to remember to take pills 8 times a day. I have physical therapy twie a week I have speeech therapy once a week. I've got something not quite right with my throat and I sound like I've beeen smoking a pack of cigarettes since the day I was born - but I've never smoked. So, I have to gargle with some stuff twice a day; I need to use a nebulilzer twie a day. I'm supposed to do various exercises the speech therapist has given me every day, I'm supposed to doexercises every day. I know why these things will be helpful and hey'll only wowrk if I DO them, but I just want to take a week or tw o vacation from Mr. Parkinson and crelax and catch my breath and then I might be more motivated to get back on the train. Sometimes I combine 2 things I hate to do,and sit at my peddle thingy (sit in a chair and there's some device with pedals that lest you simulaet biking and do a speeech therapy excercise - p ut a cork in your mouth and talk, so I put the cork in my mouth, read whatever book I'm readin aloud, and pedal away for 30 minute and if I think about it I electricute myself at the same time. Sometimes I get knots where my needle from my pump was and there's a device that you put on those knots and it shocks them and threatens them that they better go away because they may have to electfy them more, so I could be doing 3 therapies at the same time for 3o minutes But I sure would like to hit the pause buton on the whole thing sometimes.Appparently PD has no Pause button. I thought it might be fun to do some of the speech therapy while I'm on the bus. But I really want a a Pause button.

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@hirschho

I have had the double vision for a while. I am not very good in remembering time. I notice it when I am watching TV and sometimes see two golf balls when watching a putt for example.
I was diagnosed a few years ago when I had vestibular neuritis and the balance issues did not subside.

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Is the double vision connected to PD in any way? I am also experiencing double vision & loss of depth perception

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@windyh

Is the double vision connected to PD in any way? I am also experiencing double vision & loss of depth perception

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Good question, @windyh. Yes, PD does affect vision, including problems with double vision. Here is an article from the Davis Phinney Foundation website about vision problems with PD,
--Parkinson's and Vision
https://davisphinneyfoundation.org/parkinsons-and-vision/
Here is a quote from the article, "The primary purpose of the front part of our eyes (the cornea, lens, etc.) is to produce the clearest possible image, which is then transmitted to the back part of the eye, called the retina. The retina is made up of nerve cells that communicate via visual pathways using the neurotransmitter dopamine. In addition, we have two eyes with overlapping visual fields, which enables our brain to see the world in three dimensions and process complex visual information. "

How long have you been experiencing double vision, @windyh? Have you mentioned this to your neurologist or your opthamaologist during your annual eye exam?

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