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DiscussionPD Progression, stages and what to expect
Parkinson's Disease | Last Active: 26 minutes ago | Replies (35)Comment receiving replies
Replies to "@jatonlouise You have offered some great suggestions! The only one I would add is to find..."
Apathy is my biggest problem at the moment. I am fortunate to have the l-dopa pump so I don't have to remember to take pills 8 times a day. I have physical therapy twie a week I have speeech therapy once a week. I've got something not quite right with my throat and I sound like I've beeen smoking a pack of cigarettes since the day I was born - but I've never smoked. So, I have to gargle with some stuff twice a day; I need to use a nebulilzer twie a day. I'm supposed to do various exercises the speech therapist has given me every day, I'm supposed to doexercises every day. I know why these things will be helpful and hey'll only wowrk if I DO them, but I just want to take a week or tw o vacation from Mr. Parkinson and crelax and catch my breath and then I might be more motivated to get back on the train. Sometimes I combine 2 things I hate to do,and sit at my peddle thingy (sit in a chair and there's some device with pedals that lest you simulaet biking and do a speeech therapy excercise - p ut a cork in your mouth and talk, so I put the cork in my mouth, read whatever book I'm readin aloud, and pedal away for 30 minute and if I think about it I electricute myself at the same time. Sometimes I get knots where my needle from my pump was and there's a device that you put on those knots and it shocks them and threatens them that they better go away because they may have to electfy them more, so I could be doing 3 therapies at the same time for 3o minutes But I sure would like to hit the pause buton on the whole thing sometimes.Appparently PD has no Pause button. I thought it might be fun to do some of the speech therapy while I'm on the bus. But I really want a a Pause button.