Dying Well

Posted by happykc @happykc, Apr 26 5:24pm

Does anyone know of a group, anywhere, who can support each other while dying in love and grace? I do not fear dying, for a number of reasons. It will come soon, and I hope I can welcome it, I've worked hard to get to this point. But this is the first time in my eight decades that I feel lonely. I would love to share feelings, experiences, etc. with other like minded folks, but no one in my periphery shares my joy at looking forward to the transition. Family would be horrified, friends terrified. I cannot discuss this with my therapist, he is terrified himself and would be sure I am depressed and possibly suicidal. I am not. I am not anxious to die, I love my life. I used to wonder why God kept me around so long, as everyone around me, even those younger, are passing. I'm thinking it might be the grand gift of the 'Golden Years', 'cuz I am loving these days! I am not anti aging, but have no interest in attempting to retain my youth or live forever. My attitude is "I'm ready whenever He is". Not a religious person, but one of great faith and spirituality. I've spent hours scrolling around to see if there is any entity, group or person who shares my feelings. All I find is stuff to support fear of death, and how to get over it. I'm over it, and have been for some time. I'm trying to age with love and gratitude, and meet the transition the same way. I live each day as joyfully as I can. I'm just kinda bummed that I have no one to share this joy with, who feels as I do. Life has taught me that shared experiences have such great value, but maybe not this? Maybe Mayo should consider a "Dying Well" support group. I can't believe I'm the only person out there. But if I tried to start one, OMG! Friends and family would plotz! I think I'm just tired of having to keep my feelings to myself. It's a long journey, and a great one, and I'd love to share with others like me, learn from each other, help each other along. Thanks to any who read this, and suggestions are welcome but don't be a wiseass.

Interested in more discussions like this? Go to the Aging Well Support Group.

@sisyphus

I have read the original post many times ... just to be sure I understand what the writer is talking about -- even if the title may be too wide to encompass what it means. And so to me the third sentence clears any doubt: "But this is the first time in my eight decades that I feel lonely. I would love to share feelings, experiences, etc. with other like minded folks, but no one in my periphery shares my joy at looking forward to the transition."

Now loneliness is problem at Any age, and many believe it's most widespread among the teens to early twenties. But it's the second highest among we-the-old. And I'd think that especially so after one is done with what we had planned for after taking retirement. So it's in this post-post retirement stage which sees the Big Closure, staring unblinkingly in your face. This is what makes this phase of life SO pressingly important to find a way out of the Loneliness that one feels having no one to talk about how to make this last phase spent most meaningfully so you don't feel you wasted This Last Chance.

I've tried to understand what makes people Not Connect when they actually Want to Connect. Loneliness is compared to physical hunger; our physical markers of health plunge when we are lonely. A test was done by making socially-connected people hypnotized to feel lonely, resulting in HBP and other symptoms in a recent New York Times article.

So WHY are people so averse to Connect?
It seems deep down they feel As If everyone will find out that they have No Friends, a finding rarely written about but I have researched this subject for a few years now and only four places out of hundred plus article I have read point to this reason. Yes, I read/listen about this issue a lot.

But why the old-like-us who have nothing to lose are still scared of this phantom fear?
In the two recent seniors meetup groups I belong to I see this writ-large: people sign up (with photos) but 4 of 5 don't show up, nor bother to tell why.

Yet the 'hunger' is too strong to keep me in check. I'm going to keep trying.
(BTW, Aristotle didn't say for no reason: Life without a friend is not worth-living) And Socrates died among loving friends.

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Thank you for your wisdom @sisyphus . I think perhaps I gave a wrong impression with the word 'lonely'. I am not, was just trying to see if there were others who felt as I do. The overwhelming response I am receiving tells me I'm not the only one, and I guess that's all I needed. But your thoughts on Connection are so valid! I have lived outside the USA, and find this inability to connect seems to be a endemic to the US. An evolution perhaps, out of our fierce need for independence, and the ability to say "I did it all by myself", which generally brings a round of applause. And with our now toxic culture, driven by social media, people seems to be more lonely, and isolated. I grew up an only child, so solitude has always been my friend, still is. I have a wonderful supportive family, and a great group of friends, so solitude is by choice. But that is not the norm, we are herd animals by genetics. Family joked during Covid lockdowns; "mom's fine, this is right in her wheelhouse". And it is. But it is terribly human to want to connect, and I think this society has messed with that, sadly. Do keep going, do keep trying. it's people like you who keep the world turning! Peace and Every Good.

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@edsutton

I am still trying to understand what requests or needs HappyKC was bringing forth in opening of this topic.
Some vagueness or flexibility may be very appropriate in a request for conversation, so this is not a criticism.

I can try to move this forward by just sharing some of my need for human relationship as best I can express it.
My life history includes many yearnings which I often could not express clearly, some moments of wondrous connection, and many moments of "pretty darned good."

Life involves limits, sufferings and frustrations.
In general it seems to me best to try to address these without causing further distress for others.
Considerable difficulty can occur when my coping mechanisms and another person's coping mechanisms are incompatible.
I don't maintain any "softening beliefs." I did not exist before 1949, and similarly I won't exist after my death. Any reference to "after my death" will only exist for other people who remember me. "I" won't be around to remember "me."
It behooves me to experience and enjoy life (including "me") while I can. These experiences are ultimately limited, though I don't know exactly when that limit will occur.

One of my best enjoyments is enjoying other people with whom I can share honestly about our experiences and conundrums. I am deeply grateful for these people, some of whom are very young, some very old. (Each year it gets harder to find people who are older than me!)

Perhaps one of the hardest things for me has been to learn how much to say and when to accept that we've reached the limit of sharing, and to move on graciously and honestly when that limit has been reached. It is a sad moment for me when I realize that I cannot always share things I find wonderful with people I love. Post 75 years, I'm still learning about that!

HappyKC, I hope this will be in some way a response to your request.

Ed

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Hi @edsutton !
Sorry if I was being obtuse. I was trying to suss out if others felt about death. Looking for folks who are at peace with it, as am I.

That being said, I'm not hurrying towards my demise, nor trying to delay it. It comes when it comes. Till then, I will try to live my life in discrete moments of peace, joy, harmony and gratitude. It's worked well for me so far.

But, I have some great takeaways from what you wrote, so- gratitude! And I so hear you on having less older friends than younger, increasingly. But I still want to learn from everyone's perspective. Your last paragraph was a teachable moment for me, thank you so much.

Peace and Every Good
Kathy

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Wow, @projfan , Thank you so very much! Where have I been? This is exactly what I am looking for. I gave it a cursory look, and will now delve deeper into it. A dear friend who is in a different Mayo group suggested I try here, and voila! This group has been so helpful and informative and I much appreciate everyone's input. I just needed to find some folks who are on the same path. Deep gratitude! Peace and Every Good.

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@projfan

In the spirit of the loneliness thread in this conversation and making new friends at an older age, it was one of my goals when I retired, and I've been successful so far. I have learned several things from doing so.

First, if we haven't done it in years, it feels really scary. I'm not sure why that is, but I'm guessing it is because other people will judge you and decide they don't like you, and if that happens, too many of us assume it's because there is something wrong with us. It takes getting into a head space where you don't want to be liked by everyone; it's fine to not click with other people and when it happens, you'll just move on; and it's a long game -- you're not going to make 5 new friends right now, you'll make 5 new friends over the next two or three years by taking advantage of opportunities. I didn't get there by being this organized, of course -- I got there by trial and error. I decided to try something, anything, to deal with my fear and intimidation and shyness, and gradually figured out how to pull it off more regularly. (Your mileage may vary, of course.)

Second, there are ways to make it less scary. In my case, as an introvert who does not enjoy group settings, I've settled on just suggesting to people who seem compatible that we get together for coffee. Sometimes they say yes, sometimes they say no, sometimes they have no idea how to respond because this isn't something that happens when you are a librarian speaking with a library user. But really, all of these consequences are entirely survivable. I recently started getting together with someone I connected to on my Buy Nothing group on Facebook. You mostly just need to put yourself into situations where you get to naturally chat with other people for a while. And realize that most of those chats will go nowhere in particular, and can still be enjoyable for a few minutes.

Third, I go into those first coffees with the expectation that I'll enjoy the one-on-one conversation, and the first one may be the last one, and that's OK. Each time, I learn something about how to do it better the next time. Also, just because the person may click with me doesn't mean that I click with them as we get to know one another, which is a judgment-free conclusion.

Fourth, if I get a rejection off the bat, or suggest a follow-up and get a sequence of "not nows", I take that as "no" and move on. Ditto if I'm ghosted. Again, it just means we didn't click, not that either of us is a bad person. It also means that most of us don't have a good way to say "it's not working for me" or "my life is too full already" or "what the heck -- who does this?", so we use awkward ways to signal that.

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Again, @projfan, thank you. You have wonderful insights! After many years as group admin on some chronic illness groups, I got a little burnout on groups. My pal had to arm twist me for this one and I am so glad he did. I'm by nature an introvert, and also by choice. It's what works for me. A very happy introvert, I might add. But I still enjoy making new friends, I've just become terribly drama adverse in my old age, consciously chose to withdraw a bit more about 10 years ago. I feel blessed that I have lots of younger friends, for the ones my age (80) and older are dropping off fast. But, of course, the younger folk do not care to discuss death and I have to respect that.

You have a wonderful mindset as you approach these encounters. The absence of judgement is key, and I'm so glad to hear someone else say; "It's OK, we just didn't click, it doesn't make either of us a bad person." I have the same attitude, and apply it to every situation. It sure did help me weed out a whole raft of medical people. Life is too short now, and too precious. And going into something with no expectations often leaves me pleasantly surprised. Because, at 80, I am still a work in progress and have much to learn! Keep on keepin' on. Peace and Every Good.

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In reply to @bmilanowski53 "Memento morí" + (show)
@bmilanowski53

Memento morí

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@bmilanowski53- Nailed it, you did! Thanks.

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@lilymarie

In addition, thank you again for replying as it was very helpful to talk about it again to someone who truly understands this role as a caregiver. Thank you!

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Oh gosh yes, @lilymarie! Years ago, when I was caregiver to my dad, I got a day off and took a granddaughter to learn how to ice skate. LSS, I fell and broke my arm. In the Ortho clinic I had a wonderful young doc, who wanted to do a very involved surgery, including an external appliance (residents practicing and all that). I could just see my demented dad using whatever it was as something to pull himself up on, and I declined. So he reluctantly set it, as per normal. It's fine. He and I got to be good pals, and spent time grabbing when no one was looking. One day, he said to me "guess what?" It seems he had just read an article stating that the most stressful job in the world, which had been air traffic controllers for as long as we could remember, had been displaced by caregivers, especially dementia caregivers. It's hard work, and it's stressful and it eats you alive. But there are also tremendous gifts inherent in every situation, and in caregiving especially. After my dad passed (on that spectrum, he was one of the easy ones) I was having to retire, and I just wasn't ready. So, I became a volunteer eldercaregiver, as I always enjoy being in service. I just retired after almost 20 years. I gained so much from 'my people', every one of them. It's never easy, but when you realize this is the hardest job, yet you do not shirk from it, and the gift exchange between patient and caregiver is priceless, it makes it a little easier. And when others understand and appreciate you, that's the icing on the cake. I appreciate you, for what you are doing. Blessings on you. Peace and Every Good

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@scain

What about hospice. When my mom was in her process of dying I kept asking my 2 health care professional sisters about requesting visits from hospice and both sisters told me that in order to get hospice visits you have to only gave 6 mos. To live and that had to be documented somehow from a doctor. I have always been the black sheep in my family and finally asked her doctor. Turns out they were both wrong. Some patients have had hospice visits for 2 years. There is no age or time left requirement. I called and they were there within 24 hours. I found them to be helpful and matter of fact when needed. I would reach out to them as of course they specialize in dying. We need to destigmatize the whole process so that talking about it does not make us out to be ghoulish. We will all get there and some people me included want to discuss.

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@scain, yes, hospice will be a consideration as I get closer to the end. I recently retired as an Eldercargiver and have had wonderful experiences with my patients who went to hospice, whether at home, or another place. I'm less concerned with the actual event, or the circumstances leading up to it. I've experienced NDE (near death experience) so that is no worry to me. I'm more interested in how I can approach it joyfully, which I hope will minimize the impact for my loved ones. One person mentioned the death cafes, and that was very appealing to me, so I'm gonna check it out. Folks meeting over tea/coffee and cake to discuss, rationally, the process of this next great transition. I'm of Irish descent, and we say "cry when you are born, laugh when you die". That pretty much says it all, for me. Peace and Every Good.

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@happykc

Again, @projfan, thank you. You have wonderful insights! After many years as group admin on some chronic illness groups, I got a little burnout on groups. My pal had to arm twist me for this one and I am so glad he did. I'm by nature an introvert, and also by choice. It's what works for me. A very happy introvert, I might add. But I still enjoy making new friends, I've just become terribly drama adverse in my old age, consciously chose to withdraw a bit more about 10 years ago. I feel blessed that I have lots of younger friends, for the ones my age (80) and older are dropping off fast. But, of course, the younger folk do not care to discuss death and I have to respect that.

You have a wonderful mindset as you approach these encounters. The absence of judgement is key, and I'm so glad to hear someone else say; "It's OK, we just didn't click, it doesn't make either of us a bad person." I have the same attitude, and apply it to every situation. It sure did help me weed out a whole raft of medical people. Life is too short now, and too precious. And going into something with no expectations often leaves me pleasantly surprised. Because, at 80, I am still a work in progress and have much to learn! Keep on keepin' on. Peace and Every Good.

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Thank you so much!

I learned many years ago that for me, an essential part of having a chronic illness was finding ways to distract myself from it. Which doesn't happen if I wallow in my medical issues, or anyone else's medical issues. I'm all in on staying informed and learning about them, but also all in on not letting them bleed out into the rest of my life. I totally appreciate the value of support groups as a place to vent to sympathetic people, but if that's what dominates the group, it isn't for me, and I'm not going to be the right person for the rest of the group, either.

Love to hear that I can look forward to having it still work in the future! I believe I brought this observation into a post somewhere on one of these blogs, so forgive me if I'm duplicating, but my husband and I are on a waitlist to move into a CCRC-like community (which is to say, someplace where the two of us can be on the same campus if one of us needs a higher level of care, but not a place where we could buy down upfront the cost of that care as you can in a "life plan" community). And one of the two primary reasons we chose it out of a finalist group of five was that the vibe was better for making new friendships there if we chose to do that.

And continuing to learn and grow was the primary reason I retired -- I was good at what I did, enjoyed it, but if I didn't get back to challenging myself, I was going to lose my willingness and ability to do that. So, yay!

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@happykc

@scain, yes, hospice will be a consideration as I get closer to the end. I recently retired as an Eldercargiver and have had wonderful experiences with my patients who went to hospice, whether at home, or another place. I'm less concerned with the actual event, or the circumstances leading up to it. I've experienced NDE (near death experience) so that is no worry to me. I'm more interested in how I can approach it joyfully, which I hope will minimize the impact for my loved ones. One person mentioned the death cafes, and that was very appealing to me, so I'm gonna check it out. Folks meeting over tea/coffee and cake to discuss, rationally, the process of this next great transition. I'm of Irish descent, and we say "cry when you are born, laugh when you die". That pretty much says it all, for me. Peace and Every Good.

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Thank you for the feedback. I had never heard of the death cafes I, too, am of Irish decent and I love the saying, thank you for sharing. I too have had a NDE almost 50 years ago, it was wonderful. I have no fear or anxiety. I have the local university in a nearby city that is authorized to pick my body up once declared dead and use for science. No cost to my kids, a bit less drama.
Caregiving has been one of many jobs/passions that I have had the honor to experience. I think the Death Cafe would be a great addition to my life, thanks again for sharing.

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@happykc

@scain, yes, hospice will be a consideration as I get closer to the end. I recently retired as an Eldercargiver and have had wonderful experiences with my patients who went to hospice, whether at home, or another place. I'm less concerned with the actual event, or the circumstances leading up to it. I've experienced NDE (near death experience) so that is no worry to me. I'm more interested in how I can approach it joyfully, which I hope will minimize the impact for my loved ones. One person mentioned the death cafes, and that was very appealing to me, so I'm gonna check it out. Folks meeting over tea/coffee and cake to discuss, rationally, the process of this next great transition. I'm of Irish descent, and we say "cry when you are born, laugh when you die". That pretty much says it all, for me. Peace and Every Good.

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I never heard of death cafes but I love baked goods and iced coffee and sharing thoughts with like minded folks so I say count me in! Also if you have experienced a NDE you are miles ahead of us. My dad talked to me about his experience and said he no longer feared death so I remain hopeful. My daughter once asked me what if there is nothing after death and I had to take a step back as I never once had that thought. I grew up in the church but also an a product of living a very waspish life so nothing unpleasant was ever and to this day is never discussed among my 4 siblings. I am the outspoken member of that clan and feel true to myself but it is a lonely place to be. As I age I find that I am less willing to be the one in our family who shouts that the emperor has no clothes so I remain silent. It is refreshing for me to put my thought in writing here maybe for the first time in my life! I am not looking for converts just talking freely is enough. Thank all of you

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