When to accept permanent long covid?

All I can say is don't give up. My daughter finally recovered completely from CFS after 18 years! At about 15 years she was able to start work half time in a quiet low key office. Little by little she improved and went back to get a MS degree. Now, some 20 years after recovering, she had hiked the Pacific Crest Trail through the state of Washington, 268 miles. She regularly walks up to 6 miles. She was able to get a full time job and rose to be a very responsible adult in every way imaginable. The only change she has found is she is now allergic to several common foods. You might work with a nutritionist or naturopath to check that out. Again, Don't Give Up! You can't predict what your body will do, just as you couldn't predict how your body would respond to COVID. Take good care of yourself and let your body heal.

Joanland
Great story of maintaining hope. So happy for her. And you too and all those who love her. Best wishes.

Yahoo Mail: Search, Organize, Conquer

Yes. Hopefully more funding and research. Best wishes to you jeindc.

Margaret Amanda
Yes. Never knowing makes it difficult for any sense of normalcy of life. It's all about recognizing your limits and learning from each experience. But it does become an exhausting process. Best wishes and keep fighting.

Can you explain the basics of the treatment? I have had Long Covid for over 5 years and been to a dozen or more doctors. I have had a few different treatment options, but so far nothing has made any difference. I am so dizzy and out of balance that I can't without the aid of a rollator and I am desperate for something that will help. My life has totally changed since this has happened to me. I am looking for a glimmer of hope.

First Dr. Vaughn tested me for microclots and I was positive. From that point he uses medication and supplements to break down the microclots. I’d like you to read his information and blogs if you plan to pursue. Insurance doesn’t cover it so it is an investment, but I do have my life back. Read all you can. Ask me more questions whenever you like. I am an out of state patient. Best of luck to you. I do hope you get help. https://medhelpclinics.com/service/long-covid-clinic

https://medhelpclinics.com/service/long-covid-clinic Yes, it is individual. I was tested for microclots so the treatment involves medications and supplements to rid my body of microclots. I’m an out of state patient so we meet on zoom, Dr. Jordan or his staff. My blood work is done where I live (except for the microclots testing as it requires a special microscope). It’s taken a while, I started in July, 2024, but even these last few days I’m celebrating being able to work outside in the yard without crashing. Dr. Vaughn’s staff is very good about answering questions through their app and getting back with you. Any more questions?

What symptoms suggest microclots?

I am going on 3 years with Long COVID. I am not as sick as I was the first year, but I still have symptoms daily. Some mornings are worse than others usually due to fatigue and post exertion malaise. That being said, I have wondered the same thing? I have found that I do what I can, when I feel like doing it and I usually pay the price the next day but when I stay in the day, mindful that this day, hour, minute is really all I have that helps with the acceptance in that moment. I went through a very hopeless period and there are still mornings that I feel that. I try to remind myself that it can always be worse and remember that I am not homeless, have food, and all basic needs met. I am not trying to make it sound easy, it isn't but after 3 years of this, I do still have hope and when I practice staying in the moment and not spinning out with fear about the future (because I have no idea what the future holds) it helps. I hope this makes sense? Thanks to everyone that posts here. This support group has helped a lot as well.

I am curious, did the Paxlovid provide any symptom relief?