1. < Fibromyalgia

Anyone experienced a fibromyalgia flare for 6 months?

Posted by suzanne1951 @suzanne1951, Jul 4, 2023

My fibromyalgia has been flaring for more than 1/2 year. Instead of getting better, I am getting worse. No stamina, complete exhaustion, flu-like achy, headaches. I spend at least half my days lying on the sofa. Has this happened to you? Any advice?

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LynneB | @lynneb2110 | Jun 19, 2024
In reply to @ripley "Is Tramadol the only med you take for Fibro pain? What dose do you take and..." + (show)
@ripley

Is Tramadol the only med you take for Fibro pain? What dose do you take and do you take it every day? Also, do you have any side effects? Thanks

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It is my understanding that Tramadol has a number of concerning side effects such as organ damage, addiction, certain psychiatric effects, serotonin syndrome. I have been told by my doctors that it is not meant to be taken long term. I’d listen carefully to what your doc has to say. They don’t Rx tramadol at all in my rheumatologist’s office.

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1 reply
lisa1963 | @lisa1963 | 4 days ago

I know this is a old post! But I'm wondering same question how long can fibromyalgia flare I was told by a Er dr I might have it 4 years ago he felt around on my musculoskeletal it was sore I've been feeling stiff in my neck back feel hot or cold weak fatigued all the month of april now into may my dr did blood test said I do have a bacterial infection but also Said my white blood count elevated and I do have inflammation said my arthritis count was elevated then said since the arthritis count was high or elevated could be the fibromyalgia I had 24/7 symptoms since April stiff neck and shoulders fatigue foggy head I get hot then I get cold I dunno I'm very stressed out I haven't been to a rheumatologist or anything else just my primary doctor

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4 replies
plume | @plume | 3 days ago
In reply to @lisa1963 "I know this is a old post! But I'm wondering same question how long can fibromyalgia..." + (show)
@lisa1963

I know this is a old post! But I'm wondering same question how long can fibromyalgia flare I was told by a Er dr I might have it 4 years ago he felt around on my musculoskeletal it was sore I've been feeling stiff in my neck back feel hot or cold weak fatigued all the month of april now into may my dr did blood test said I do have a bacterial infection but also Said my white blood count elevated and I do have inflammation said my arthritis count was elevated then said since the arthritis count was high or elevated could be the fibromyalgia I had 24/7 symptoms since April stiff neck and shoulders fatigue foggy head I get hot then I get cold I dunno I'm very stressed out I haven't been to a rheumatologist or anything else just my primary doctor

Jump to this post

You should see a rheumatologist. A high white count and a bacterial infection means you should be on antibiotics to clear it. Did the doctor give you antibiotics? All your symptoms could be due to a bacterial infection. Fibromyalgia pain is not due to inflammation. It's due to problems in the pain center of the brain. It can mimic some of your symptoms but it it's a bacterial infection.

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plume | @plume | 3 days ago
In reply to @lynneb2110 "It is my understanding that Tramadol has a number of concerning side effects such as organ..." + (show)
@lynneb2110

It is my understanding that Tramadol has a number of concerning side effects such as organ damage, addiction, certain psychiatric effects, serotonin syndrome. I have been told by my doctors that it is not meant to be taken long term. I’d listen carefully to what your doc has to say. They don’t Rx tramadol at all in my rheumatologist’s office.

Jump to this post

Tramadol? I only take Tylenol. I also have never heard of it given for Fibromyalgia. Walking and stretching is the absolute best pain killer for me!

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1kay2 | @1kay2 | 3 days ago
In reply to @lisa1963 "I know this is a old post! But I'm wondering same question how long can fibromyalgia..." + (show)
@lisa1963

I know this is a old post! But I'm wondering same question how long can fibromyalgia flare I was told by a Er dr I might have it 4 years ago he felt around on my musculoskeletal it was sore I've been feeling stiff in my neck back feel hot or cold weak fatigued all the month of april now into may my dr did blood test said I do have a bacterial infection but also Said my white blood count elevated and I do have inflammation said my arthritis count was elevated then said since the arthritis count was high or elevated could be the fibromyalgia I had 24/7 symptoms since April stiff neck and shoulders fatigue foggy head I get hot then I get cold I dunno I'm very stressed out I haven't been to a rheumatologist or anything else just my primary doctor

Jump to this post

I would se a rheumatologist, that's their area of expertise. After 45 years with it, I am always in a flare just lesser degrees of pain.

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gprior | @gprior | 3 days ago

After 28 years of living with fibromyalgia I have found that changes in the weather and other factors cause flares in me. Cooler weather and the weight of having extra clothing on, the type of the clothing too, I can only wear cotton as other fabrics eg polyester doesn't allow our body to breathe and is not good for me and I'll flare after a few minutes. Cold or
windy weather not good for me either.

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awwnuts427 | @awwnuts427 | 2 days ago
In reply to @lisa1963 "I know this is a old post! But I'm wondering same question how long can fibromyalgia..." + (show)
@lisa1963

I know this is a old post! But I'm wondering same question how long can fibromyalgia flare I was told by a Er dr I might have it 4 years ago he felt around on my musculoskeletal it was sore I've been feeling stiff in my neck back feel hot or cold weak fatigued all the month of april now into may my dr did blood test said I do have a bacterial infection but also Said my white blood count elevated and I do have inflammation said my arthritis count was elevated then said since the arthritis count was high or elevated could be the fibromyalgia I had 24/7 symptoms since April stiff neck and shoulders fatigue foggy head I get hot then I get cold I dunno I'm very stressed out I haven't been to a rheumatologist or anything else just my primary doctor

Jump to this post

That is my constant state.

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lexiepayne | @lexiepayne | 1 day ago
In reply to @lisa1963 "I know this is a old post! But I'm wondering same question how long can fibromyalgia..." + (show)
@lisa1963

I know this is a old post! But I'm wondering same question how long can fibromyalgia flare I was told by a Er dr I might have it 4 years ago he felt around on my musculoskeletal it was sore I've been feeling stiff in my neck back feel hot or cold weak fatigued all the month of april now into may my dr did blood test said I do have a bacterial infection but also Said my white blood count elevated and I do have inflammation said my arthritis count was elevated then said since the arthritis count was high or elevated could be the fibromyalgia I had 24/7 symptoms since April stiff neck and shoulders fatigue foggy head I get hot then I get cold I dunno I'm very stressed out I haven't been to a rheumatologist or anything else just my primary doctor

Jump to this post

I haven’t found much luck with rheumatologists and fibromyalgia. I have had a 4 month flare up. One weird thing I did try, but it hurt like hell, was intravenous stem cell- 5 sessions total. It felt like my body was attacking itself from the inside but 3 months later I realized I was considerably better

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