Have you tested positive for synucleinopathy?

Anybody test positive for synucleinopathy and with small fiber neuropathy? Synucleinopathy is Neurodegenerative disorders with alpha-synuclein (α-syn) accumulation (synucleinopathies) include Parkinson's disease, Parkinson's disease dementia, dementia with Lewy bodies and multiple system atrophy (MSA). I've been to 6 neurologist's and all have basically given me the same answer, a referral to another neurologist. I've been referred to and contacted and transferred files and gone to the Mayo Clinic in Rochester, they gave me the SFN diagnosis, but they couldn't explain the synucleinopathy other then to say "you have severe neurological issues, see your neurologist when you get home". A Baylor Scott and White Parkinson's specialist in Temple Texas told me from the results of a skin punch biopsy that I have "synucleinopathy, specifically Pure Autonomic Failure and my case is way over his head". Go to U.T. Southwestern Medical Center in Dallas Texas. They got my files and allegedly said (they responded to the Dr, not me. So this is what he said that they said), "you already have the tests, you have the answers and you know the treatment, so we will not take him as a patient". There's a facility in Cincinnati that can help. I contacted them and they said it's to rare of a disease, so there are no studies they have and no one qualified. My primary doc found so called specialists at Stanford University Medical Center in Northern California. So I go there, Dr Dong Sinn spent a whopping 12 minutes with me, had a complete attitude the entire time and told me he can't help and to try the University of California San Francisco. I got a hold of them while I was in Stanford, but they couldn't get me in while I was there. They "might be able to get me in, in a couple months but no guarantee that they even have staff that can help". I live around Austin Texas. I've spent over $30,000 traveling to specialists just to get referrals to other neurologist's, well I did get the small fiber neuropathy diagnosis. At least that explains why I feel like I was hit by a truck everyday. The only known way to confirm which of 5 probable diagnosis is in autopsy. So I just requested to my primary doctor to pick one of the 5 and let's start treatments. If after an adequate amount of time there is no improvement then move on to the next of 5 and so on until we find it or I die from it, whichever comes first. ANYBODY KNOW OF A BETTER ROUTE TO TAKE? I'm out of options, patience, ability to handle this much pain every single day, the tremors, no balance, losing my vision and hearing, my entire digestive tract is now paralyzed, which includes my epiglottis. So now I can't eat because when I swallow it goes straight into my lungs, so now I use a syringe and adult formula through a tube hanging out of my stomach. Half of my bladder is paralyzed, the ueters going from my kidneys to my bladder are paralyzed and now at night my lungs start to shut down while I'm sleeping, sending me into hypoxia with an 0² saturation level in the 70's. My strength is gone, the fatigue is overwhelming and the pain is at an average 8 on a 1 to 10 scale and a couple days a week I'm at a 9.⁹⁹⁹. I'll never say it's a 10, because there are days that are worse than I've ever experienced before. Besides, the day I say 10, is the day I leave this planet. What a nightmare of a life. Good luck to you all. May your cure be found and create a wonderful quality of life for you.