Brensocatib timetable to market

I just had a visit with my pulmonologist who is a BE/NTM and at a major research hospital and he said that it is scheduled to be released to patients 8/12. The promotional pre roll-out materials are being distributed, so it seems to be a sure thing.

Sounds like your pulmonologist is on top of new information etc.
I have given thought to pulmonologists and other medical doctors/fields as compared to say teacher who have to go back to school or teacher training classes every so many years, the same with realtors, and wondering if doctors have to do the same.....That would surely have given more pulmonologists a better understanding of what is best to tell their Bronchiectasis patients all they should know as a patient and use as a patient, etc., such as airway clearance techniques etc.
If you don't mind my being inquisitive, what research hospital are you referring to?
Barbara

Do you know if there are certain requirements to be eligible to take it? I have heard some people say you had to have a certain number of exacerbations/year.

Thanks! Deb

I see Dr. Ashwin Basavaraj at NYU (NY University). Prior to seeing him I was under the care of a local pulmonologist who diagnosed me with MAC by bronchoscopy, gave me a flutter device (not Aerobika) and said I should use it, but with no instruction, no nebulizing etc.

Doctors that are affiliated with research hospitals are much more up to date with info in the field and given opportunity to engage in research. Also the coordination of care, from labwork to imaging to the doctor makes such a difference.

Best of luck and health to you!

Hi
Yes me too I've been following ins1007 brensocatib for a few years now ,I'm just counting the months down but I believe it's useage in uk will be summer 2026 it cannot come quick enough for me.

I am really struggling to find any support groups and feel very alone in tackling this disease hoping someone in this forum could perhaps point me in the right direction. Thanks in anticipation

Hi nannynoonar -
I am so sorry to hear you are struggling. We have all been there. It's not an easy ride for sure. I wish I had a good answer, but I don't think I do. I know that after I was seeing my pulmonologist in NY for 18 months, he asked me if I would consider talking with some new members in the support group. The crazy thing is I had never heard of the support group and could have definitely used it when I was first diagnosed! So I don't know if it makes sense to ask your pulmonologist, or call around to some of the hospitals in your area? Also, when I was first diagnosed and was searching around, I came across NTM Patient Care UK https://www.ntmpatientcare.uk. They run periodic zoom meetings with speakers, etc. I reached out to them because I didn't know where to turn and one of their board members reached out to me and she was a lifeline when I needed it. She was very kind. Her name is Shirley Haywood. Maybe she knows of some online support groups? I know I'm not offering much, but I wanted to share the little I had because I know how hard it is to cope. Wishing you better days ahead.

Welcome to the group. I’m really sorry you need to be here, but think you’ll find it a very welcoming and helpful group.

A suggestion-make a new post with this question. It might not be seen by most members if they aren’t looking for Benzocatib info.
I suggest you add how long you’ve been had bronchiectasis, if you have MAC, your treatment routine,area you’re in, and questions. Feel free to omit those and just ask you questions.

Where are you located? I'm not a big facebook person, but have heard there is a facebook group which may be more personal. I agree, this site is very warm and supportive and I am so glad I found it. I do feel a need for more human contact. I live alone with my adult son with Down Syndrome. I have many side effects from the anti-biotics and the day to day is difficult. Please keep me posted if you find anything-I may join that as well. Good luck! Kathy

Check out "Bronchiectasis: Lets Support N Share Awareness!!" on Facebook, 14,000 members. You might find what you're looking for there.

Personally, I'd stay away from "Lung Matters: Covid, Bronchiectasis, MAC, NTM, Nocardia, Pseudomonas & More" as they tend to be authoritarian and less supportive, which shows in their membership (6,700 members).

You might search Facebook for "bronchiectasis" and quite a few other support groups come up.