1. < Bladder Cancer

What were your initial bladder cancer symptoms?

Posted by meadows @meadows, 3 days ago

I'd like to know, especially from women, what your first symptoms were for bladder cancer. I'm also curious why blood in the urine can come and go - some days there and some not. Thanks very much.

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tanya | @hmmm | 1 day ago
In reply to @jaxfl "Interesting that you do biweekly nivolumab. I am doing monthly treatments. It can also be submitted..." + (show)
@jaxfl

Interesting that you do biweekly nivolumab. I am doing monthly treatments. It can also be submitted subcutaneously nowadays. However, Mayo has not mentioned that to me yet.

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I am also doing immunotherapy monthly for a year. Nivolumab. Have a neobladder.

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jaxfl | @jaxfl | 1 day ago

Monthly appears to be more common nowadays.

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jowilliams1 | @jowilliams1 | 1 day ago

It is interesting that the two of you are both monthly. Is that your only immunotherapy drug? It is for me.

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jaxfl | @jaxfl | 23 hours ago

Yes. Mono therapy. Yervoy did not work out in clinical studies as combination therapy. It did for other malignancies. https://www.guoncologynow.com/post/nivolumab-ipilimumab-fails-to-extend-survival-rates

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alterglen | @alterglen | 4 hours ago

I thought I had a UTI but then started passing blood-tinged urine. That is when I went to my PCP who immediately ordered a CT scan which showed bladder cancer. I then had cystoscopy with removal of my tumor. I am now 2 years with this cancer, currently on Padcev and doing well except for aggravating peripheral neuropathy in feet and reduced grip strength in my hands.

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