When to accept permanent long covid?

I had covid in 2020, used Paxlovid for 5 days and then relapsed again, not uncommon because they only allowed you 5 days on the medication, now it’s been approved for full dosage. I got long covid later and I had to deal with some awful symptoms, I went to doctors for help and but there wasn’t much available to help me. I think that it was about 2 years before I noticed the symptoms were going away, it was very frightening to think that they would never stop and I knew that lots of people were not getting better. I feel grateful that it went away but I take precautions to avoid another infection, it’s just too scary having to deal with many symptoms afterwards.

To gregorb —

I’ve had LC since February 2024. I also wonder how long it will continue, so I take note of published estimates. Articles reporting on different samples of longhaulers have given correspondingly different accounts of what percentage of people were over their LC by 3 months, 1 year, 2 years, etc.

How long it takes for a person to get over LC depends in part on their particular physiology, underlying pre-Covid health status,
Covid vaccination status, the set of LC symptoms they have, and which Covid variant they were infected with.

So, I remain uncertain about when I’ll be over my LC.

I got my 2nd post-infection Covid booster a week ago. My LC response has been neutral, so far. I get these boosters to prevent a new Covid infection on top of my current case of LC.

— friedrich

Thanks so much for your reply and hopeful message. So glad you were finally able to heal. I'm hoping for the best and trying to sta positive and avoid stress.Yes. Scary. Best of luck to you in the future. Stay healthy. Thanks.

Thanks Friedrich. Yes. Many factors are involved I'm sure. Hope we're on the good side of those factors. Best of luck to you. I'm reluctant to boost because of previous negative reactions and adding to my symptoms. I avoid any possible situations and always mask up if not possible. But I'm always on the fence and could change my mind. Best wishes. Gregorb

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Hi there, LC Friends: I Was smacked with Covid 12/24/19. Yep, lucky me but that’s another story. In terms of LC: I started having LC symptoms in March 2020. Like many on the string I had them all! Aftertwo years my doctor referred me to specialists that could take a look at everything that was bothering me (heart, digestion, memory, lungs, bronchial tubes, Micro clots, etc.) Not much was known about LC back then, however, everyone of the different specialists Said that to the best of their limited knowledge, it was all due to Covid. Mind you, I’d also had 5 years of positive Lyme Disease tests as well. So we were trying to battle both. In any case, here I am 5 1/2 years out and I still get PEM. It presents itself as total exhaustion the day after I try to live my old life! As well, I’ve had two flares of diverticulitis in the past six months and also had achilles tendon surgery a year ago. My doctors done a lot of research on Covid and turns out it affects just about everything so you never know what’s going to crop up. No matter how positive I am mentally how much I stay active, that bugger does not want to leave. Within a month or so I will be seeing a Long Covid specialist at Dartmouth. I’m not really certain what I’m looking for in terms of answers because I don’t really believe that anyone has any still at this late date, but I would like someone who is well schooled in LC.
My most recent challenge, as some of you who read it might know, is with the micro clots. Out of the blue, no matter what I’m doing, or have done my cherry red, lower legs have returned. Mind you, not Daily, but they show up for a few days go away for a few days and come back for a few days That actually stopped happening Four years ago. I have no idea what’s prompting their return.
Anyhow, sending so much love and healing energy to all of you.

I've had it for a year...nasty cough, muscle aches, brain fog, fatigue...all rotating symptoms...some days better than others

Sounds familiar. Sorry for your suffering. Wishing you the best and good luck.

No one deserves all you've had to deal with. Best of luck at Dartmouth. Hoping the best for you.

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Hi,
I had Covid the end of 2019, beginning of 2020. I had ( have ) long haul covid. My problem has been my Dr. s they treat my symptoms separately. No one sees the problem as just being one thing. Then there's the Dr's that say everything looks fine on your test, I'm not seeing anything. Then I doubt myself, am I crazy? The ringing in my ears that never stops, extreme fatigue. I don't go to Drs now, I have given up on even trying to see if anyone can help. When I have asked about long haul covid as being a problem, they tell me that maybe I should see if I can find someone who specializes in the long haul. I figure this is what I have to live with. I use to own a restaurant, now I can't even go into a restaurant. My business is gone, my husband has passed away. There is nothing left, unless you count long-haul covid.

Finally feeling like my old self. In my 5th year of long COVID. Dr. Jordan Vaughn in Birmingham has a treatment that is working for me. I began the treatment in July, 2024. Check it out!