Congestive Heart Failure in young people

I don't know that much about stem cells but this gives us all hope that are in pain,fibro,m.s and so on thanks

Stem cell therapy a way out?

@gr82balive
I understand, that's exactly what I'm doing. It's hard coming to terms with the fact that at my age, I have to start living like I'm 50. You know, it's really hard to think about the fact that I'll be taking meds all my life, especially when I don't even have a family of my own and all that. I am hoping a miracle happens. I want to enjoy my life to the fullest and live like every young man.

@bangel, I suspect embryonic stem cells are needed to rebuild heart muscles. If so, the treatment is not legal in the US, except for a few select research projects. We have to stay alert for developments based on that research.
Martin

@predictable Look at this.. http://www.celllmedicine.com/stem-cell-therapy-for-heart-failure/

Thanks @bangel. This web site gives us a basis for optimism, but not yet for celebration. The Stem Cell Institute is located in Panama. Its medical staff is made up of several Panamanian medical school graduates. The written material is very persuasive and promotional in tone. The Institute says its clinical trials' reports are published on the clinical trial list at the National Library of Medicine (which makes no judgments as to quality of the therapies being tried and gives no assurances that trials on the list are ready for human application).

Even so, a number of American medical institutions have permitted the Institute to list them as interested in the technology, and this gives encouragement for following the work of the Institute and asking our own doctors about a referral to the Institute for diagnosis and treatment suggestions. A key issue for me is cost -- the Institute's charges for the therapy, the cost of travel and hotels in Panama, the duration and number of treatments needed, etc. A second issue is whether the therapy can be transported to the US and initiated or continued here. Lets keep looking for additional promising information.
Martin

Hi all,
I'd like to add to this discussion about stem cell therapy (also known as Regenerative Medicine) and heart issues. It can be really difficult to tell which stem cell therapies and regenerative medicine practices are effective and which institutions are offering evidence-based proven therapies. In fact, recently the Food and Drug Administration (FDA) released a stern warning against unproven stem cell therapies. The FDA issued these two press statements: https://www.fda.gov/newsevents/newsroom/pressannouncements/ucm573427.htm and https://www.fda.gov/newsevents/newsroom/pressannouncements/ucm573431.htm.

To help people learn more about the proven therapies and the promise of developing therapies, Mayo Clinic offers a free telephone consult service. When you call the consult service, they can tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.
Or call 1-844-276-2003 to speak with one of our experts.

Cardiac regeneration is an area of focus for Mayo Clinic. The overarching vision for the cardiac regeneration program at Mayo Clinic is to develop new therapies to cure ischemic heart disease. See more info about clinical testing that span the disease spectrum here: http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/focus-areas/cardiac-regeneration

You can also read great articles about successful use of stem cells for babies born with Hypoplastic Left Heart Syndrome (HLHS)
- Researching innovative solutions for rare heart defect https://connect.mayoclinic.org/newsfeed-post/researching-innovative-solutions-for-rare-heart-defect/
- Breakthrough Stem Cell Treatment for HLHS Patients https://connect.mayoclinic.org/newsfeed-post/breakthrough-stem-cell-treatment-for-hlhs-patients-27fb46/
- Misconceptions of Stem Cell Research https://connect.mayoclinic.org/newsfeed-post/misconceptions-of-stem-cell-research-25b20d/

There is hope and there is hype. It's important to query and know the validity of your sources of information. Happy to see the sharing and cross-referencing of information here.

Thanks for the additional information. You mention the Mayo clinic is conducting research for schemic heart conditions, how about non-schemic conditions.

@bangel

It is good to hear from you! I'm glad that your surgeon is proceeding slowly. He sounds like a good person. I'm doing OK, thanks for asking.

When is your next appointment? Look forward to hearing from you with further updates.

Teresa

@hopeful33250
Tee, I'm doing quite well. My next appointment is tomorrow.