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Lichen sclerosis diagnosis correct?

Posted by moontree @moontree, Apr 7 8:15am

Hi, new to the site. I have had vaginal/perianal burning for 6 months.
Culture all negative. Burning comes and go. Redness only. No itching at all. Biopsy finally done showed only “mild” sclerosis.
Told to start on Clobetasol. It’s been a week. It’s making my burning worse. Before the drug the burning was at a 3, now it’s at an 8. To a point I need to wash it off after 30 minutes.
I have no other skin changes. No white patches at all. You would think there would be some other skin changes after 6 months. No itching what so ever.
Does anyone have similar experience? How common is sclerosis without white patches or itching? Is the ointment making me worse?

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sandy07 | @sandy07 | 1 day ago

Thank you for all your comments and suggestions. I saw my gyn again and results are some scarring, a small open sore (very painful), all areas painful to touch, but no itching. She prescribed estrogen for sore and other small area and wants me to continue clobetasol which seemed to help. Scheduled for a checkup in 8 weeks.

Has anyone experimented with their diet? I’ve read that foods high in oxalates and histamines can irritate symptoms for LS. I’m doing more research but was wondering if others have tried this.

REPLY
sandy07 | @sandy07 | 1 day ago
In reply to @sandy07 "I have the same type of LS that you have - no itching or white patches,..." + (show)
@sandy07

I have the same type of LS that you have - no itching or white patches, just burning. Diagnosed 9 months ago. Pain was intermittent but has been most of the time lately. Was prescribed hydrocortisone when it first appeared. Used it for a week or so and it seemed to help, so I stopped using it. Trying to get in to see gyn this week to get re-checked. Need more information from her and possibly another biopsy. These posts help a lot in knowing I’m not alone and what people are doing to control this condition.

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Can’t seem to find a way to edit my post but I noticed that I said the hydrocortisone seemed to work and I stopped using it, but what I meant to say is that I continued to use it. Sorry about that.

REPLY
diwhitham2347 | @diwhitham2347 | 1 day ago

I'm using Clobetasol 2xs daily for 2months. No issues with creme.
Taking tramadol for pain 2xs daily. Trying to manage pain.

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