Weird neurological symptoms

Posted by frank815 @frank815, May 3 12:38am

It all started feb-march of 2024 I started getting twitching all over then one day I woke up and started noticing a clicking in my throat and very mild swallowing issues then I would feel these what felt like adrenaline rush in my forearms but now I realized they were actually tremors and I also started noticing my muscles getting thinner then tremors spread to my legs i would notice them more going down stairs so i scheduled appt with neurologist she said she would send me for mri (normal) and emg i waited to do that to see if symptoms progressed every think stayed the same till about April 2025 so I went back to neurologist she said it was in my head and and referred me to a physiatrist so I scheduled the emg in march came back clean then after that my symptoms started to progress rapidly I noticed the internal tremors got a little worse but then stoped and I only noticed them when I pick up heavy stuff but then I would have dizziness almost every day my memory seems to be getting worse lost some hearing in right side and the weakness in arm and leg seems to be more on the right I also have stiffness on that side including fingers comes and goes but constantly in thumb still functioning neck stiffness I do sigh alot am also a smoker i have vision issues fatigue feels like weakness in legs and arm are getting worse by the day I also have stiffness in my jaw and it tires easily when I chew dry mouth dry eyes bp is low laying down andbthen higher standing I do have low oxygen when sleeping but on bipap for osa oxygen levels seem to be improving little by little I have seen endocrinologist rheumatologist gi all labs normal I did order some labs my self all normal I did order one called vgcc n-type it was normal but close to high just wondering if any has had symptoms like this and any input would be greatly appreciated doctors keep pushing me off it's so frustrating every day I'm miserable because I feel like crap

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

gently | @gently | 6 days ago

frank815, have you had autoimmune testing, sorry if I missed it in your post. I think your symptoms would justify almost any test they can think of except psychological testing. She has decided the symptoms are generated psychologically? Do you think that is possible because it doesn't sound correct to my ears.

sungaltoo | @sungaltoo | 5 days ago

In reply to @frank815 "She said looks like essential tremor i did have achr test done normal so was mri..." + (show)

I’m glad you were able to have the tests and get a diagnosis. It helps a lot so you can find ways to deal with it

frank815 | @frank815 | 5 days ago

In reply to @sungaltoo "I’m glad you were able to have the tests and get a diagnosis. It helps a..." + (show)

This was back in june 2024 still no diagnosis symptoms progressed more since I seen her i talked to the nurse in her office and she said doctor won't do anymore test or another mri to go see someone else for another opinion so I told them I will be filling a complaint with the hospital

sungaltoo | @sungaltoo | 4 days ago

In reply to @frank815 "This was back in june 2024 still no diagnosis symptoms progressed more since I seen her..." + (show)

I wouldn’t file a complaint because it’s well known in their industry they mark your file and then when your records are ordered you’re prejudged. Just shop around and don’t share your experience other than to say you’re seeking a backup opinion if they ask.

frank815 | @frank815 | 3 days ago

In reply to @gently "frank815, have you had autoimmune testing, sorry if I missed it in your post. I think..." + (show)

Yea I have had some autoimmune testing like ana anca gad65 all negative I also had vgcc- n-type was normal but almost high sometimes I think it might be in my head but then the symptoms I experience there is no way it can be in my head

frank815 | @frank815 | 3 days ago

In reply to @dlydailyhope "@frank815 I hear your frustration and have been where you are now. Did your neurologist do..." + (show)

I do get horrible pain in that area that comes and goes some days it doesn't hurt at all but other days it hurts bad but can it cause all those symptoms I have even affected memory and vision and clicking in throat and mild swallowing issues and stiffness in thumbs just to name a few

dlydailyhope | @dlydailyhope | 3 days ago

In reply to @frank815 "I do get horrible pain in that area that comes and goes some days it doesn't..." + (show)

@frank815
Is the pain in your neck, right arm and leg? Where is your primary source of pain?

Did you have only a MRI of your brain? Did you review the report in detail yourself? Did you get a MRI of your cervical spine? If so, what exactly did it list as the impressions by the radiologist?

Getting a 2nd or 3rd opinion from a neurologist may be good. Do not tell them that you already saw others and see what they say on their own. Let them know the top 3-5 symptoms and concerns that affect your quality of life each day.

If you have pain in your neck and weakness in arm/leg, you may want to see an orthopedic spine specialist to review your symptoms, reflexes, gait, and request a new MRI of your cervical spine if they think you may have spinal cord compression causing your neurological symptoms.

My cervical spine issues caused me daily headaches, neck/shoulder pain, arm/hand and leg weakness. It also seemed to cause balance issues, brain fog, hearing loss, tinnitus, swallowing and speaking issues, and bladder issues. Spinal cord compression in your neck can cause many problems above/below the level of compression.

Did your first neurologist do a skin punch biopsy to test you for small fiber neuropathy? I have this as well and it can cause all sorts of issues with temperature and skin sensation plus autonomic nervous system disruption (heart/lungs/digestion). Did your neurologist do neuropathy bloodwork and check glucose levels (diabetes)? You will want to quit smoking because it is a toxin that can damage your nervous system, blood vessels, heart and lungs.