← Return to Primary cutaneous marginal zone B-cell lymphoma (PCMZL)

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I will keep you posted!

And not a silly question at all. When he was first diagnosed, we were very shocked and worried and didn’t have much information on it. My husband was definitely anxious (as was I) and it was a very hard few weeks as we were navigating through testing and doctor appts.

Now that we know it is just on his skin and there is no systemic involvement we are relieved. And have been reassured by his doctors.

We’ve been told -

1. Out of all of the lymphomas (there’s over 150 I guess?) that this is the “best” one to have

2. It is very lazy and slow growing and very treatable

3. People do not die from this

And after all of the research I’ve done, I would probably rate it around a 3-4/10?

It’s definitely something we’ll need to stay on top of and manage, but plan to continue living our lives to the fullest we can!

We have been trying to conceive for a year now. I’ve had two early losses. So that is our ultimate goal and are feeling grateful that we have the chance to keep trying!

I found the page but haven’t been accepted yet.

I just typed in “PCMZLers” and scrolled down until I found it!

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Replies to "I will keep you posted! And not a silly question at all. When he was first..."

@medgabi Hi medgabi, How are you?

I trust you are doing well.

I haven’t heard from you from 6 May 2025.

Please contact me and keep in touch as I don’t know anyone on my continent who has this extremely rare diagnosis.

Thank you

Take Care
Steiner

@medgabi
I was trying to send you a private message but have been unable to?

If you could I would be extremely grateful if you would send me a private message.

Thanks so very much

Take Care

Kind regards
Steiner