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Hi!!
Yes wild! How is it possible that 1 isolated very faint dot on your forehead would slowly grow over 3 yrs & be diagnosed as PCMZL?! What? How? Why? So many unanswered questions……

Thanks for your reply. You are very knowledgeable about PCMZL. The small reddish/pink pimples that your husband had & no symptoms……. I’m speechless…. it’s so random ……. so rare…… no one knows a lot about it imo.

Keep me posted/updated on what you decide & likewise.

This may sound like a silly question….. but ……Is your husband really worried about it? How serious is PCMZL in a 1 - 10 scale do you think? Not sure what to think?

I can’t find the FBpage

Take Care
Kindest regards

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Replies to "Hi!! Yes wild! How is it possible that 1 isolated very faint dot on your forehead..."

I will keep you posted!

And not a silly question at all. When he was first diagnosed, we were very shocked and worried and didn’t have much information on it. My husband was definitely anxious (as was I) and it was a very hard few weeks as we were navigating through testing and doctor appts.

Now that we know it is just on his skin and there is no systemic involvement we are relieved. And have been reassured by his doctors.

We’ve been told -

1. Out of all of the lymphomas (there’s over 150 I guess?) that this is the “best” one to have

2. It is very lazy and slow growing and very treatable

3. People do not die from this

And after all of the research I’ve done, I would probably rate it around a 3-4/10?

It’s definitely something we’ll need to stay on top of and manage, but plan to continue living our lives to the fullest we can!

We have been trying to conceive for a year now. I’ve had two early losses. So that is our ultimate goal and are feeling grateful that we have the chance to keep trying!

I found the page but haven’t been accepted yet.

I just typed in “PCMZLers” and scrolled down until I found it!