← Return to Primary cutaneous marginal zone B-cell lymphoma (PCMZL)
DiscussionPrimary cutaneous marginal zone B-cell lymphoma (PCMZL)
Blood Cancers & Disorders | Last Active: May 6 1:01pm | Replies (18)Comment receiving replies
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I will keep you posted!
And not a silly question at all. When he was first diagnosed, we were very shocked and worried and didn’t have much information on it. My husband was definitely anxious (as was I) and it was a very hard few weeks as we were navigating through testing and doctor appts.
Now that we know it is just on his skin and there is no systemic involvement we are relieved. And have been reassured by his doctors.
We’ve been told -
1. Out of all of the lymphomas (there’s over 150 I guess?) that this is the “best” one to have
2. It is very lazy and slow growing and very treatable
3. People do not die from this
And after all of the research I’ve done, I would probably rate it around a 3-4/10?
It’s definitely something we’ll need to stay on top of and manage, but plan to continue living our lives to the fullest we can!
We have been trying to conceive for a year now. I’ve had two early losses. So that is our ultimate goal and are feeling grateful that we have the chance to keep trying!
I found the page but haven’t been accepted yet.
I just typed in “PCMZLers” and scrolled down until I found it!