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Diltiazem

Hypertrophic Cardiomyopathy (HCM) | Last Active: 13 hours ago | Replies (12)

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@boatsforlife

Hi @mmicahk . Boy does THAT sound familiar! A decade or so ago - well before I was diagnosed with oHCM, I was put on Metoprolol. Don't remember the dosage. Within a very short time I was literally falling asleep at my desk, dozing off while driving... No matter how much sleep I got, I would last about 6 hours and then be completely unable to stay awake. Even had to go on reduced hours at work. I was moved from Metoprolol to Diltiazem within a couple months and that problem went away immediately. Fast forward about 8'ish years and I was finally diagnosed with obstructive HCM (after about 16 years of fruitless investigations), and put on the brand-new Camzyos. Still on Diltiazem along with the Camzyos with zero negative effects. As I've posted here previously (ad nauseum, sorry folks), especially in the discussion below, I had symptoms exactly like what you describe, and within less than 2 weeks ALL of the symptoms were 100% gone. Now I'm back to being the poster-child for lazy with no excuse for lack of activity. Pre-Camzyos I could barely walk to the end of the block but this summer, at age 61, we're looking at a 3 week train & backpack-hiking trip around parts of Europe. Some folks here have not fared as well with Camzyos but it's been life changing (excuse the hyperbole) for me. It may be worthwhile for you to visit camzyos.com to learn about this relatively new medication. Good luck chasing this all down. Take the time to scroll through the many discussions here at Mayo Clinic Connect about HCM, Camzyos, and related topics. This place is a wealth of information and the people here are wonderful about sharing their experiences.
https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/?commentsorder=newest&signin=true&pg=1#chv4-comment-stream-header

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Replies to "Hi @mmicahk . Boy does THAT sound familiar! A decade or so ago - well before..."

I am thinking about chatting with cardiologist about switching from Metroprol xl to cardizem. Feel like Metroprol makes me fatigued. On Camzyos 5 mg. and numbers all back to normal.Any thoughts
/suggestions?

The fact that you can be away for 3 weeks is something HOCM and Camzyos have prevented me from doing. Getting the echocardiogram for the Accredo Pharmacy to agree to deliver the next 30 pills each month so that I don't run out of my daily Camzyos pills has prevented me from being away for that long. How do you coordinate this?