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Hi!!
I thought my pinkish/red raised nodule on my forehead which started as a dot and grew to 1cm X 1 cm was a completely innocent pimple. I thought to myself I won’t squeeze this. I’ll leave it and it will just disappear naturally. When it didn’t and continued to very slowly grow over 3 years ……. I made the appointment with a Consultant Dermatologist and was told it was a Basal Cell Carcinoma. It was excised. 3 monthly later I was called back and told the biopsy came back and it wasn’t a BCC. I was stunned/extremely upset. I was told I was a 1 in 3 million person and this PCMZL is extremely rare. Cause unknown. So it’s good to chat.

I was over the moon to learn your husband’s PET/CT scans were completely clear. So happy.

At my last bloods 2 weeks ago I was told by the nurse that the bloods tell them nothing?! I’m going to ask my Consultant Haematologist what exactly that means? I will let you know what she says.
I wish you could upload pictures too. I don’t know what a fungal patch would look like? Is it completely white? And does it have a completely flat white scaly grainy texture? Does it look like a flat white scaly grainy perifungal wart? Or is it a flat pinkish/red scaly grainy texture? Thank you

I pray all is really good news from the oncologist in 3 weeks. Please let me know.

I personally wouldn’t have the drug. I personally would investigate myself the injections more fully before making a decision on them. These are extremely difficult personal decisions to make.
Take Care. Kindest thoughts and regards

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Replies to "Hi!! I thought my pinkish/red raised nodule on my forehead which started as a dot and..."

Oh my gosh! That’s wild! They did look like small pimples. Nothing about its presentation ever alarmed us.

From my understanding, the blood work won’t show much unless there is systemic involvement. Liver/kidney markers, red blood cell, white blood cell or lymphocyte changes. Or elevation of LDH (lactate dehydrogenase) which measures the amount of cell turnover in the body. But with just skin involvement, there are likely no changes. Which is good!

Yes usually fungal patches are white and scaly and itchy and flat. His were never like that but we really didn’t know what else it could be.

I will keep you posted on what we decide!

Yes the injections are the more conservative route, but I also want him to have the best chance of complete remission without relapse if possible.

I wish it was just a single lesion like yours, then treatment would likely be more straightforward.