miss diagnosed???

Hi @rma83, You can have PMR with normal inflammatory markers. Here's more information:
-- Diagnostic difficulties in polymyalgia rheumatica cases with normal erythrocyte sedimentation rate and C-reactive protein values: https://journals.lww.com/md-journal/fulltext/2023/09290/diagnostic_difficulties_in_polymyalgia_rheumatica.48.aspx.

I'm not a doctor but I think just the fact that the prednisone gets rid of the pain is normally an indication of PMR. Have you been seen by a rheumatologist?

Agree with all your comments. For myself this applies. Also I’ve tapered off twice of prednisone only to get the temporal headaches and my hair hurts and scalp tender. So… I started actemra injections and I think I’m having some good results. My scalp has stopped being tender to touch no temporal pain yet less joint pain and will again begin taper of prednisone in about 2 weeks. 🤞🏻I am not yet at therapeutic level of dose so I’m hoping this new injection works to get me off prednisone and relief of PMRs multiple strange symptoms ( no more vaccines for me) and this site has helped me more than you all know. 🙏 Thanks

yes.at the time it was a rheumatologist that diagnosis but changed her mind when a PA started there and convinced her (the Dr) that it couldn't be PMR. That's over 5-6 years ago and I've been through hell since. That's the only RHEU group around here so I will see my ortho surgeon tomorrow and there is another RHEU at U CONN in CT that he can refer me to, hopefully. Thank you for your help, I will look that info up.

Thanks so much for your reply. Both replies have given me the hope I so needed. I will see my ortho surgeon, had knee replacement a year ago, tomorrow and I will try to get my referral. I was starting to think I was alone and your replies have really helped, although it's sad there are more of us around. I will let you all know how this turns out. Thx again!

Yes. It has been around but more prevalent since Covid and the Covid shot. In fact the Actemra I have started is for treatment of long Covid also. Now they got a name for that too. Good luck. I hope you can find a rheumatologist that has a little experience with PMR and is willing to take you through the process of treatment options. 🤞🏻

You deserve the second opinion and there are other more advanced tests
to show inflammation in PMR. Affected joints can be checked with ultrasound
even when they have normal X-rays signs of inflammation may be documented.
The newer labs are IL-6, fibrinogen level, serum Amyloid A and a calculation
from your blood cell count SII ( systemic inflammatory index). Hs CRP and sed rate will be repeated.
The new rheumatologist should do a thorough joint physical and history
Bring all the old lab tests. Don’t be surprised if they try an appropriate dose
of prednisone therapy after the current lab testing..