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i have struggled with an undiagnosed swaying dizziness for months

Posted by kalebt @kalebt, Apr 28, 2023

hello all. I'll start by saying I've seen 2 primary doctors, 2 therapists, 2 chiropractors, and an ENT. none of these relieve my swaying dizziness whatsoever. I was told it was anxiety but the 2 different medications I took worsened my symptoms, even after days of stopping. I have a few new appointments, but I wonder if anyone has struggled with this or knows someone. I'm looking to recover as soon as possible. I am a 21-year-old male that had to file for unemployment due to this illness. I've had this since October of 2022. for a full description I attached two files. one short explanation and backstory another longer version as well. thank you.

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j67topher | @j67topher | May 4 11:44am
In reply to @fehrlady "From the description of symptoms, has any professional mentioned PPPD? I was diagnosed after 3 years..." + (show)
@fehrlady

From the description of symptoms, has any professional mentioned PPPD? I was diagnosed after 3 years by an ENT. Diagnosis must rule out major physical problems, then comply with circumstantial criteria. Usually requires vestibular therapy and cognitive behavioral therapy.

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I too have been diagnosed with PPPD. Almost two years now and I don’t seem to be getting much better.
I function relatively well but the intensity really fluctuates depending on my activity. It’s always present when awake and it makes life very difficult. How are you doing with treatment?

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fehrlady | @fehrlady | May 4 1:02pm

PPPD can be a huge burden to live with! I' ve learned to be patient and keep anxiety at bay. Vestibular therapy can help if done religiously and being positive. I feel I'm progressing slowly

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minnmitzi | @minnmitzi | May 4 1:13pm
In reply to @SusanEllen66 "What is PPPD?" + (show)
@SusanEllen66

What is PPPD?

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I wondered the same thing. From Google I found PPPD = persistent postural-perceptual dizziness. But I know nothing about it.

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1 reply
SusanEllen66 | @SusanEllen66 | May 4 6:45pm
In reply to @minnmitzi "I wondered the same thing. From Google I found PPPD = persistent postural-perceptual dizziness. But I..." + (show)
@minnmitzi

I wondered the same thing. From Google I found PPPD = persistent postural-perceptual dizziness. But I know nothing about it.

Jump to this post

@minnmitzi Google didn’t have any information?

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arfus | @arfus | May 5 9:20am

I've had constant, slight dizziness for 19 years running. The diagnosis, from Mayo Rochester and others, is vestibular neuritis. In 2006 the vestibular nerve on the right side of my head suddenly, and almost completely, stopped functioning. The job of keeping me in balance is being performed by only the left vestibular nerve. The cause is thought to be a virus. I'm still searching for a miracle answer. Very frustrating!
An array of in office tests can identify this issue.
Good Luck!

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