@1959,
So happy to here from you!!!

I understand the feeling of frustration and alone. I to had been in and out of hospital and multiple ER visits. After my final Hosp discharge, my blood pressure the very next morning in my therapy session 7am, was 300/208. My physical therapist cried! We knew the md's would just give me crisis medications and send me home. I got in my car that min and drove 5 and half hours to the ER at St Mary's Mayo's, Rochester MN. They admitted me immediately. They did everything they could to find the answers.

I pray you find the courage and strength to do what is needed. Your daughter is in a very sick. I pray for wisdom of the medical team, I hope she sees very, very soon.

Dawn