Dying Well

Posted by happykc @happykc, Apr 26 5:24pm

Does anyone know of a group, anywhere, who can support each other while dying in love and grace? I do not fear dying, for a number of reasons. It will come soon, and I hope I can welcome it, I've worked hard to get to this point. But this is the first time in my eight decades that I feel lonely. I would love to share feelings, experiences, etc. with other like minded folks, but no one in my periphery shares my joy at looking forward to the transition. Family would be horrified, friends terrified. I cannot discuss this with my therapist, he is terrified himself and would be sure I am depressed and possibly suicidal. I am not. I am not anxious to die, I love my life. I used to wonder why God kept me around so long, as everyone around me, even those younger, are passing. I'm thinking it might be the grand gift of the 'Golden Years', 'cuz I am loving these days! I am not anti aging, but have no interest in attempting to retain my youth or live forever. My attitude is "I'm ready whenever He is". Not a religious person, but one of great faith and spirituality. I've spent hours scrolling around to see if there is any entity, group or person who shares my feelings. All I find is stuff to support fear of death, and how to get over it. I'm over it, and have been for some time. I'm trying to age with love and gratitude, and meet the transition the same way. I live each day as joyfully as I can. I'm just kinda bummed that I have no one to share this joy with, who feels as I do. Life has taught me that shared experiences have such great value, but maybe not this? Maybe Mayo should consider a "Dying Well" support group. I can't believe I'm the only person out there. But if I tried to start one, OMG! Friends and family would plotz! I think I'm just tired of having to keep my feelings to myself. It's a long journey, and a great one, and I'd love to share with others like me, learn from each other, help each other along. Thanks to any who read this, and suggestions are welcome but don't be a wiseass.

Interested in more discussions like this? Go to the Aging Well Support Group.

@ruby2zdy

Dying well? I do not want to die of Alzheimer's. Not only would I just be a body waiting to fail, the money I want to leave to my daughter would be drained, possibly to nothing, paying for my care. In my sate (WA), you can choose (ahead of time) to be "transitioned" by **having both food and water withheld**, which is unbelievably cruel. Even if you've indicated in a formal, witnessed, signed document, that suicide or assisted suicide is what you want, our culture can't deal with purposeful death. (Although it's OK to euthanize your pets.) I would like to have physician-assisted suicide, even if I'm not functional enough to start the drip myself. A previous formal, signed, witnessed document should be enough to allow one to avoid the pain, expense, and family grief of dying by Alzheimer's (or other dementia).

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Hi,
I'm sorry you are going through Alzheimer's. That must be hard on you. I understand your concerns. However in considering physician assisted suicide, you may be wasting your money. Only God decides who and when one dies. If it isn't your time, you won't die. That's just the way it is and always has been. I would suggest that you discuss all of this with God and ask for his guidance. Just talk to him like he's your best friend and he is! I will say a prayer for you.
I wish you the best.
PML

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@pml

Hi,
I'm sorry you are going through Alzheimer's. That must be hard on you. I understand your concerns. However in considering physician assisted suicide, you may be wasting your money. Only God decides who and when one dies. If it isn't your time, you won't die. That's just the way it is and always has been. I would suggest that you discuss all of this with God and ask for his guidance. Just talk to him like he's your best friend and he is! I will say a prayer for you.
I wish you the best.
PML

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Although I appreciate that you have a deeply held belief, this is not the place to insist that yours is the only belief with value. I would never try to dissuade you from following your value system but would encourage you not to discount someone else's beliefs and values. Best of luck to you.

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@gravity3

Although I appreciate that you have a deeply held belief, this is not the place to insist that yours is the only belief with value. I would never try to dissuade you from following your value system but would encourage you not to discount someone else's beliefs and values. Best of luck to you.

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Why is it okay for there to be numerous opinions regarding assistant dying but one time someone mentions God and your feathers are ruffled. Why? It's another opinion. You call it a belief but it's an opinion to most.

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This might sound strange but you might look into the services of a Death Doula. I'm working with one in Tucson. This person provides great reading and video materials along with questions that spark important discussions about death. She will also sit with people who are making the transition.

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@mablesmith

Why is it okay for there to be numerous opinions regarding assistant dying but one time someone mentions God and your feathers are ruffled. Why? It's another opinion. You call it a belief but it's an opinion to most.

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@pml @mablesmith @gravity3, this discussion is supportive and helpful. Thank you for sharing your opinions, as well as the values and beliefs that guide your choices in life and death.

Where opinions and beliefs may differ, it is important to acknowledge with respect as outlined in Mayo Clinic Connect's Community Guidelines https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/

If you have any concerns about a post or the Community Guidelines, please contact the Moderating Team using this form: https://connect.mayoclinic.org/contact-a-community-moderator/

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@cxcordon

This might sound strange but you might look into the services of a Death Doula. I'm working with one in Tucson. This person provides great reading and video materials along with questions that spark important discussions about death. She will also sit with people who are making the transition.

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@cxcordon, what a great resource to add to this discussion - a death doula, also called end-of-life doula.

For anyone who isn't familiar with the term, A doula comes from the ancient Greek term and is a non-medical professional who provides guidance through a significant health-related experience. It is usually associated with pregnancy and childbirth - a birth doula. As in beginning new life, and end-of-life doula can help with the process of grief and understand the stages and process of dying.

Some of you may be interested in this Mayo Clinic podcast that explores "Sitting with the fear of death."

- What has helped you cope with death? https://connect.mayoclinic.org/blog/read-talk-grow/newsfeed-post/what-has-helped-you-cope-with-death/

@cxcordon, how did you find an end-of-life doula? How has she/he helped you face dying?

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@colleenyoung

@pml @mablesmith @gravity3, this discussion is supportive and helpful. Thank you for sharing your opinions, as well as the values and beliefs that guide your choices in life and death.

Where opinions and beliefs may differ, it is important to acknowledge with respect as outlined in Mayo Clinic Connect's Community Guidelines https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/

If you have any concerns about a post or the Community Guidelines, please contact the Moderating Team using this form: https://connect.mayoclinic.org/contact-a-community-moderator/

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Thanks for good information!

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Hi Colleen, thank you for explaining the services of the End-of-Life Doula (better than my name, Death Doula 😉
I was the caretaker for my parents and was with them as they were making their transitions. Without intending to be judgmental, I observed quite a bit of denial, fear of death and a reluctance to participate in the services available through Hospice.
I am trying to think ahead, get comfortable with the idea of death and have in place people who will help me make the transition in a peaceful, loving way. This is particularly important to me as I was an only child, do not have children or relatives who live nearby. My husband is a few years older than me and it's likely I will end up alone. Rather than engage in a pity party, I decided to be proactive and met with the End-of-Life Doula on the recommendation of a friend.
My husband and I have meet with her about five times to discuss the various aspects of death, from the practical (Medical Power of Attorney, etc.) to the spiritual. It can be a little unsettling to really contemplate one's death but I believe familiarity and accepance are the key. Having gone through this exercise, I feel much more "in control" in terms of knowing that I will have some kind people by my side to help me when it is my time.

Here is the information about the woman my husband and I are working with.
Billie Jo Vonhoff
Conscious Acts of Love
End-of-Life Doula and Coaching Services
Full Spectrum, Holistic End-of-Life Doula, Educator & Grief Tender
http://www.consciousactsoflove.com
971-404-4229
Billie Jo may know people who do similar work up in the Phoenix Scottsdale area. She may also be wiling to talk on the phone. Best wishes to all the folks on this thread. I understand the loneliness and hopefully we can all find the resources to help mitigate the sense that we are all alone.

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