Living with Atrial Fibrillation: What are Your Experiences?
I’m 74 and have just been diagnosed with chronic atrial fibrillation. My pulse rate usually stays between 75-100 and I’m taking 5mg of Eliquis twice daily. My cardiologist says there are no good meds for this type of Afib. I’m wondering if I should consider cardioversion, ablation, or just live with it and stay on the blood thinner? Anyone have experience living with AFib long term?? Thanks!
Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.
Thank you SO much! I have no symptoms, no discomfort, no quality of life issues, take homeopathic remedies and never feel my afib. Everything tells me to just keep on living!!!
To janlm….
This isn’t a forum for arthritis, though MCC must have one. I have had physical therapy, pumped iron for the last 35 years, had massage therapy, am slim and have to eat well bc of GERD and other gut problems, but around five years ago the arthritis in lower back progressed to point where I need meds for quality of life.
Tylenol doesn’t do much. There was a study done around 2019, I think, that studied a group of arthritic patients while administering dosages of hydrocodone ER. You could google around that if you have reached a point where you are desperate for relief.
My pcp has no problem prescribing these kinds of meds for me. I am 89. You have to be super careful, of course.
I lived with AFib from 2005-2010. I started taking Magnesium Glycinate and a daily Aspirin in 2010. I very rarely have an episode of AFIb. Just an occasional "blip", as I would call it, maybe once a week.
Sorry you got the vax. Do not need to apologize for saying the truth.
Done
After 3 years of being shuffled from one Dr. or Physicians Assistant to another, numerous Prescrip's (causing countless side effects), I learned that in a Large City 100 miles away there was a Clinic treating heart problems that had recently been rated equal to Mayo & Cleveland Clinics. I picked up my phone, called them & asked for an appointment. The person with whom I spoke asked Numerous questions, then scheduled me with one of their Cardiologists whose Specialty seemed to be in line with our discussion.
Last week my daughter & I saw their Cardiologist (a few hr.'s prior I took files/info. from previous Dr.'s for him to look-over ). The appointment lasted an hr., he asked Good questions that 'got-to-the-heart-of-the-matter', gave his opinion, & summarized by saying he didn't understand why all the Dr.'s/Physician Assistants prescribed all those Med.s. His advice: Continue eating the healthy diet (I've eaten For Years), maintain the healthy weight (I've maintained for years), get plenty of sleep, continue to get moderate exercise, & If I'd like, come back in 6 months, he'd like to follow my 'case'. Then he outlined some of the symptoms I might experience if the A-Fib is no longer stable.
Whew! Finally a Dr. who gave me clarity & prospective.
Hello
In October 2010, I wore a 30-day heart monitor that showed I was in atrial fibrillation 100% of the time. (Unfortunately, that’s starting to feel familiar again.) Dr. Lishan Aklog, then at St. Joseph’s Heart and Lung Institute, performed open maze surgery and replaced my mitral valve.
Shortly after my recovery, Dr. Aklog left St. Joseph’s, and I haven’t had a follow-up with a cardiologist since. He had encouraged me to get regular exercise, and true to my obsessive nature, I dove headfirst into road cycling. Over the next four years, I averaged 125–200 miles per week—commuting to work, riding weekends, and participating in charity events. I typically averaged 18 mph during 100-mile rides, and I estimate I logged around 17,000–18,000 total miles. Eventually, my work schedule changed, and without the commuting element, I lost momentum.
Fast forward to the night of April 10th before I woke up on April 11 a switch flipped and all my average heart rates jumped 20-30 bpm it varies day to day and has remained that way. I’m back in Afib 100% of the time have an appointment next Friday. I do not and have not taken any medications like blood thinners since the surgery. I will be sitting in a recliner and get a high heart rate alert from my Apple Watch. I purchased a KardiaMobile 6L and have 107 tracings since April 20th. Afib 61%/65 detections, Tachycardia 30%/32. My resting heart rate used to be 59-64. The last WEEK resting rate has been 79-96 with a daily range 48-179. I’m doing everything now that I was doing before the switch flip but only 25% of it.
Can you provide any sources? I’ve done research had open maze surgery in 2010 for afib, worked up until the night of April 10th, now I back in Afib 100% of the time. Confirmed with a 24hr heart monitor which was much better than the 30 day one I wore back in 2010.
Hopefully you can find support to make your decision heard. I’m 70 just had Afib returned after 14+ years. Had open maze surgery to correct being in Afib 100% of the time, worked for 14.5 years now I’m back to afib 100% of the time. I refuse to take medication and swap possible remedies for ensured side effects. I hope you find the help you need.