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Justin McClanahan, Moderator avatar

Living with Fibromyalgia: Introduce yourself & meet others

Fibromyalgia | Last Active: Jul 11 10:22am | Replies (53)

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Profile picture for auntieneen @auntieneen

Hi- I’m 51 and I was diagnosed with Fibromyalgia about 32 years ago. Back then it wasn’t something most doctors had even heard of. I’ve tried lots of supplements and different protocols, all with some degree of success, but lately it’s become quite challenging. I know it isn’t a progressive disease, but I think my ability to cope with the pain and other symptoms along with the onset of menopause and a side order of long covid has made it so much harder to live with. I feel like every day is a huge battle. I just found the app More Good Days and I’m hoping to find something that will help there. The only thing I take that is related to fibromyalgia is Zoloft. I don’t react well to Lyrica or gabapentin. I’m not sure if I should see a rheumatologist or if there is a different type of doctor who can help. My GP is lovely, but we may have reached the end of her knowledge. If anyone has suggestions for questions to ask my doctor or requests for testing or treatments I should discuss with her, I’m all ears.

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Replies to "Hi- I’m 51 and I was diagnosed with Fibromyalgia about 32 years ago. Back then it..."

@auntieneen what I would suggest to you is to call NORD or GARD. I put the links to the two non-governmental organizations in the discussion just above your entry. You could tell them about 32 years of fibromyalgia and now you’d like a good doctor. They could really set you on the right track.
What one thing would you like to learn from these doctors?