Essential Tremors

I would ask if the Primidone is actually working for you as I was given a low dose of that and it made me drunk walk and didn't help at all. So, I have signed up for a number of studys as there really isn't a cure for them. I have not been diagnosed with Parkinson's, but I do have MS.

I was diagnosed with essential tremor when I was 24 years old. Today I am 59. I take propranolol (beta blocker), primidone and frontal (anxiolytic). With advancing age, tremor, even with all this medication, has worsened. I'm trying a new alternative which is HIFU (High Focused Ultrasound). The treatment consists of the emission of a focused ultrasound performing a unilateral strategic injury in dysfunctional pathways in certain diseases, in this case Essential Tremor.

Thank you for posting this. I also take propranolol for tremors but it doesn't work either. I have read about it and was actually going to do that ultrasound procedure. They do it at Barrow here in Phoenix. The reason I did not is because I have AFib and you could actually wind up with a bleed in your brain as well as doing a tube MRI is not my favorite thing to do at all. but I'm going to have a procedure done to take care of the AFib and possibly after that I might look into it. I'm not exactly sure where you are located but I know they have several different places that they can do that procedure. There have been several other studies that I am looking into for essential tremors. I basically like doing them to help others. so I wish you luck with that ultrasound treatment. and yes after a while there's nothing that will fix it. but the videos that I have seen it's miraculous what the ultrasound can do but they can only do one extremity at a time. which would be fine if at least one of my hands would work.

I have been plagued with what my neurologist claims is Benign Essential Tremor. I say claims as she has never ran any tests and just looked at my shaking hands.

It all started when doctors put me on Cymbalta which triggered so many side effects I had to come off it for fear of serotonin syndrome. They then ran a pharmacokinetic gene test (through Tempus) that looks at how your genes metabolize medications and sure enough, it recommended I have a reduced dose of Cymbalta as i'm a poor metabolizer of the CYP2D6 gene and I had been on the max dose. I have been off Cymbalta for 1.5years now but all the different medicines they put me on at the same time (muscle relaxers, pain killers, ADHD meds, Cymbalta, nerve blocks) have damaged my body so badly and left me with tremors that only continue to worsen with each year. I have some doctors say "meds won't cause tremors", then I had another doctor say "yes Cymbalta can cause involuntary tremors that are often permanent".

As of right now I need to find a new neurologist as mine only wants to keep injecting me with Botox for Migraines (for my migraines) and when I told her I want to 'pause' the Botox so Mayo could assess my condition, she told me to just call her back when I'm ready to make another Botox appointment. When I asked if I should make a regular visit with her, she said "no", just call when you're ready for more Botox. For reference, I feel the Botox every 3 months since mid 2021 has caused much of my health symptoms including cervical instability. My point is, consider medications you're on, or have been on as a possible cause for tremors if you do not have a solid answer for why you have developed them.