Welcome to Connect, @ccarter006! It can be a relief to speak with others who share a similar diagnosis to realize you’re not alone. There are a number of members who also have Cutaneous T-cell lymphoma-CTCL. You’ve already popped into this conversation with @josettecedo @beeclee @aloha2012 @shari715 where they share their experiences.
More CTCL discussions can be found by typing CTCL in the search bar. https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=CTCL#discussion-listview

From my understanding there are several different types of CTCL, with Mycosis fungoides being the more common of this rare type of lymphoma. Were you diagnosed specifically with mycosis fungoides?
Since CTCL is a form of lymphoma, and you have a history of Factor V Leiden which is a blood disease, are you already working with a hematologist oncologist? They may also be able to discuss your CTCL.
Are you having switch doctors because of your insurance change?