Positive vibes ONLY thread

We allwant positivity in our lives.Yes,we constantly read negative posts but the way I see it is maybe that can help me in future medication choices.I take it with a grain of salt and try to learn from what has caused these meds to cause such neg outcomes and unless you hear it from what has happened to others we wouldn’t know the negativity of these drugs.Sure we can read inserts regarding meds but hearing a person’s experience is real.I want to be aware of how something suggested to me as a medication has affected someone.Then we can take the negative with the hood and try to find a good balance.Just food for thought.

Was that addressed to me? It’s hard to tell since you didn’t reply directly but this post is the only one after mine. I’m sorry if you didn’t find my post positive. I will bow out of the discussion. Cheers!

Please don't bow out. I found your post very positive! I love this site because of all the valuable discussions. Good news is always good to hear for balance. Yours was!

I'm on the Evenity journey, and it's this site that helps guide me. I have no issues and am excited to see my dexa/tbs in July. Will post results.

@nannygoat5 I love your idea of a positive post!!! I've posted on other threads, but I was diagnosed 2 years ago, at 58. I'm active & thought I was healthy, so was shocked. My diagnosis kick-started a strength training & Pilates exercise program that I love. After a few months of Alendronate (I couldn't take it but had prior reflux issues & know lots of people, including my 84 yr old mom who take it with no problem!), I found a great NP at an Osteoporosis Clinic at a local teaching hospital who listens & presents options. She put me on Tymlos, which I've been on for 18 months with few side effects. I had a Dexa scan last week and I'm now in the Osteopenia range in my spine!!! My hips were already Osteopenia. I'm finishing this last month of Tymlos & then will get a Reclast injection. One of my friends in my workout today said she is about to get her 2nd Reclast injection, and had absolutely no side effects from her initial one.

Also thanks for the info about @gotbuffbones on Instagram - had never heard of her!

Not all negativity is bad.It opens our eyes to yes there may be a better choice for me.Yes,I would like to know side effects causing more pain.That gives an opportunity to explore further esp if many are experiencing the same side effects.We need an open mind for good vs bad to be able to make educated choices.

Hello @nannygoat5,

This is a great discussion to get started. You make a great point about sometimes finding only negative results despite there being positive results out in the world as well.

I'd like to invite @monkhhi to this conversation. @monkhhi started a discussion based on their positive Evenity experience after prolonging treatment because of being scared off by reading the experiences of others:

"Evenity worked for me: Why I chose medication for osteoporosis"
- https://connect.mayoclinic.org/discussion/evenity-worked-for-me/

I'd also like to invite @neesie0159, @kristie2, @gravity3 and @pami who all shared their positive experiences as well.

@nannygoat5, if you are comfortable sharing - do you have a positive experience to share with your osteoporosis journey - A successful lifestyle change or medication experience?

Thanks for tagging me, I just saw this, and I am all in favor of a positive vibes only thread! There are plenty of horror stories, let’s hear the good. I was diagnosed in my mid 40’s with osteoporosis thanks to an MRI for back pain showing an old compression fracture. The NP’s best guess was my eating disorder in my teens screwed up my bones. Several years on Actonel, then stopped due to GI side effects and no one thought to follow up for the next several years, despite me now being menopausal. Another fracture happened before someone took it seriously. I was recommended to try Prolia then, but was terrified of side effects and did Fosamax for the next few years. During that time (and 3 more mild fractures) Evenity was being recommended more, I decided to try it. Expensive co pay, but worth it in the end. My spine went from -4.5 to -3.0. My only side effects were painful arms where the injections were given, lasted about 12 hours each time and was manageable. I started Prolia last August and have had 2 injections. No side effects that I can definitely connect to it, since the last one I’ve had some off and on jaw and facial pain, but my jawbone is fine and it’s mostly mild pain. 2 more and then I am supposed to go to Reclast. I have had 5 mild compression fractures altogether (I don’t think I have had any more) and hopefully won’t have more. I was afraid of every med because of posts about horrible side effects, and yes, they can happen, but I am glad I went ahead with the meds.