Living with Parkinson's Disease - Meet others & come say hi

My husband has Parkinson's and we live in The Dalles, Oregon. We are very fortunate to have a couple whom run a twice a week exercise program here. This program has been going on for about three months. Participants are in various stages of this disease. With the exercises, everyone has made so much positive progress.

It is so good to hear from you, @ramblyn.

I am sorry to hear of your husband's PD diagnosis, but so pleased that he has exercise classes that he can be a part of. Exercise really does make a difference in delaying disability associated PD.

I look forward to hearing more about how your husband is doing. How long ago was he diagnosed? What were his main symptoms that led to his diagnosis?

My husband was diagnosed about 5 years ago. He has many tremors for a few years before he went to see a neurologist. With very basic treatment here, we arranged to have an evaluation at the Mayo Clinic in Scottsdale, Az. while already down there during the winter. The evaluation there was very thorough.

He also had a two hour dementia evaluation on another visit. I notice lately after dinner, he has added some teeth chattering and other facial movements.

Hello @ramblyn

I suppose he is taking Sinemet (Carbidopa/Levodopa) Has his doctor offered him a script for Amantadine? For some of us, this med helps with the tremors and extra movements associated with PD.

Do the tremors tend to be on his "off-times" with his med?

Hello world! I am 68 years old. I was diagnosed with Parkinson's yesterday. I have had some minor chattering of teeth for some time (several years) which has not seemed to change. My right hand has had trembling for at least 5 years and has progressed to the point where writing is nearly impossible (painstakingly difficult at best) and very problematic for mouse pad control. I use my left hand when needed but over the past month or so noticed it to was developing minor shaking. Not any real issue yet. When I run into any difficulties I pray and release my problem to God trusting in his plan for me that his will, will be done. I have been dieting and exercising relatively regularly for about 4 years. Thinking of taking up Ty Chi which I saw was recommended for Parkinson's. Had a knee replaced 2 years ago and worked hard in recovery. I tore a rotator cuff a year ago and changed exercise from weights and "gorilla training" to isometrics and passive low impact muscle exercises.

I have been politically active for about ten years working for candidates and on issues at the local, state, and some national candidates and issues. I may switch my focus somewhat from all that, in order to address much needed home maintenance before that becomes impossible for me in the future. I have not yet told my family or friends. My wife is 5 years older than I and not in as good a physical shape as she has a below the knee prosthesis which can be problematic. My 3 children and 3 grandchildren live several hundred miles away although 2 of my wife's siblings and their children live within 15 miles... theirs is not a particularly close family and my extended family is several hundred miles away.

I would expect most would be depressed from this diagnosis and I think about that and presume I have some depression but while I am not happy about it, my attitude is that "it is what it is." I love doing research and found this group during my research of Parkinson's. Exercises, stretching and some meds to manage the symptoms and quality of life seem to be what I need to concentrate on physically. I am in fairly good physical shape which is a good place to start.

Well, that is me probably giving too much information. I generally do not talk much (except for some political subjects) but I do enjoy this type of internet writing.

Hello world! I am 68 years old. I was diagnosed with Parkinson's yesterday. I have had some minor chattering of teeth for some time (several years) which has not seemed to change. My right hand has had trembling for at least 5 years and has progressed to the point where writing is nearly impossible (painstakingly difficult at best) and very problematic for mouse pad control. I use my left hand when needed but over the past month or so noticed it to was developing minor shaking. Not any real issue yet. When I run into any difficulties I pray and release my problem to God trusting in his plan for me that his will, will be done. I have been dieting and exercising relatively regularly for about 4 years. Thinking of taking up Ty Chi which I saw was recommended for Parkinson's. Had a knee replaced 2 years ago and worked hard in recovery. I tore a rotator cuff a year ago and changed exercise from weights and "gorilla training" to isometrics and passive low impact muscle exercises.

I have been politically active for about ten years working for candidates and on issues at the local, state, and some national candidates and issues. I may switch my focus somewhat from all that, in order to address much needed home maintenance before that becomes impossible for me in the future. I have not yet told my family or friends. My wife is 5 years older than I and not in as good a physical shape as she has a below the knee prosthesis which can be problematic. My 3 children and 3 grandchildren live several hundred miles away although 2 of my wife's siblings and their children live within 15 miles... theirs is not a particularly close family and my extended family is several hundred miles away.

I would expect most would be depressed from this diagnosis and I think about that and presume I have some depression but while I am not happy about it, my attitude is that "it is what it is." I love doing research and found this group during my research of Parkinson's. Exercises, stretching and some meds to manage the symptoms and quality of life seem to be what I need to concentrate on physically. I am in fairly good physical shape which is a good place to start.

Well, that is me probably giving too much information. I generally do not talk much (except for some political subjects) but I do enjoy this type of internet writing.