Grover’s Disease

What's your recipe for the cilantro smoothie please. New to GD . Thank you

pernio/grovers Does anyone here have both conditions? Thank you for letting me in,,,,Dex.

That is very interesting. I used to be an MRI/Radiologic Technician and was diagnosed with Grover’s disease last year.
I used to hold babies when they needed X-rays and have MRIs to test the equipment. Wondering about the correlation?

Some refer to Italian Parsley as cilantro, but it is not cilantro, it's just a different variety of ordinary parsley.

What kind of contrast was used for your MRI? Wouldn't that be more likely to be a trigger ?
MRI's don't have radiation exposure.

Hello,your dermatologist has to use an Eczema diagnosis as the primary issue so the insurance company will approve it

Simplest way is simply create a tonic, put 1/2 bunch fresh cilantro, trim 1/2 inch off cut stem ends and discard then put washed stems and leaves and about 1/2 cup of water in good blender (Ninja Professional 1000w is a good value and excellent at pulverizing and liquifying). Chugging it down holding your breath will minimize the taste. I've tried adding fruit and so on but there is no way to disguise the taste.
I feel such sympathy for all of you still suffering. As I have mentioned a group of us boggled about our results trying cilantro and it helped about 40% of us. I was one of the lucky ones, still am.

To disguise the taste you can try three things: sweet cherries, pineapple and best for me personally is kiwi.
I buy it frozen, defrost it, and mix it with fresh cilantro in a blender. I also add some pure organic black elderberries juice, not so much for the taste, but every healthy. And like this I make about a liter, and drink a cup twice a day.

Everything I’ve read and heard about Grover’s is that it’s a genetic autoimmune issue. My derm and primary doc both have it. Triamcinolone helps some. Also a transdermal cannibis gel (if legal in your area and you have a card) stops the itch. I alternate using them to keep my system from getting accustomed to the same thing every day. Hang in fellow sufferers.

Grovers is life altering. I've had it twice with 3 years between episodes. The first time it lasted a year and went away on its own I guess. Meaning I was actively using multiple symptomatic treatments at the time. Supposedly there is no cure and no one seems to be looking for one. Therefore, I cannot say what I was doing cured or resolved anything. I produce and believe in Phyto pharmaceuticals. But it is my belief, that they did nothing for me. Not symptomatically and certainly not a cure.
That said, the Grovers came back and this time the struggle has been for more than 2 years in duration and is on going. I have done a great deal of study and research on the issue. I am a Nurse of 37 years and a large part of my job includes understanding research and studies. I will not bore you with the details, other than to say for 2 years I have ruined clothes and bed sheets with blood from scratching.
Through my own research, I have found that Dupixent works. I have had a 60 to 70% reduction in the itch. I can sweat and go to my grandkids baseball and flag football games without the need to return to the vehicle to cool off. My lesions have finally healed because I am not scratching to the point of bleeding and the open wounds have healed reducing the possibly of infection (Staph).
I don't know if Dupixent is a cure, again the treatment is ongoing. But I can tell you, this can help you get your life back, if you can use it. Coconut oil also helps a great deal.
They are wrong when they say it is caused by heat. Heat and sweat worsens the condition to be sure, but this is not the cause. I think it is the opposite. It is dry skin that brings it on and heat with sweating worsens it.
The Dermatologists in my area were and are "by the book." In short, they say say "sorry there is no cure."
I fired them all. They failed to engage, in fact barely showed up. I diagnosed myself and asked my GP for Dupixent. This drug has changed my life.
So, in closing Dupixent and coconut oil. The combination will change your life as well.
Be prepared, the injections are terribly expensive and will require a specialty pharmacy. Dupixent is not indicated as yet for Grovers Disease. I work full time and have full coverage insurance. I am an Honorably discharged U.S. Army Veteran and have Medicare. My primary insurer's (BCBS) pharmacy, CVS, denied the claim and the 2 subsequent appeals . My Dupixent injections have thus far have been via physician supplied free samples. It is my understanding each injection comes at a cost of approximately $20,000.00.
As for the dose of Dupixent: 1st round 600mg sub Q, then 300mg every 2 weeks there after.
My Best to You