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Caring for NDPH Family Member

Caregivers | Last Active: May 2 5:13pm | Replies (6)

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@lisalucier

Hi, @grandma88 - I thought that the topic you brought up here, new daily persistent headache (NDPH) deserved some attention. So, I'm tagging some members who've mentioned it previously on Connect @quazar @covidstinks2023 @linamend @marye2 @llee1 @design1 @nguyening @lblack @mscaj01 @vasaiovic @annabelle1575. Hoping this will give them a space to vent, exchange ideas and share experiences with each other, as you mentioned, grandma88.

grandma88 - I'm guessing you are caring for someone who has NDPH? If so, will you share more about that situation?

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Replies to "Hi, @grandma88 - I thought that the topic you brought up here, new daily persistent headache..."

Hi @lisalucier - Thanks for your message. Yes, my husband has had New Daily Persistent Headache for 24 years. We think his major ear surgery, the same month that the pain started, was the cause. Many NDPH sufferers start with some type of head trauma. Besides the CONSTANT head pain, he has spikes which simulate migraine when there is a weather change. He can feel a thunderstorm coming 2 or 3 days before it hits. I hate that he has this horrible condition and try to be as understanding as I can be. It’s just the two of us, so the house is fairly quiet. When we have family visit, the additional noise stresses him out and makes his head hurt worse.