← Return to Living with Parkinson's Disease - Meet others & come say hi

Discussion
Comment receiving replies
@beverlyann

I’m just curious how this works when someone travel 12 hours to be seen by Mayo Clinic. Does one see a team of Doctors and then determine what all test need to be ordered. And do the test require prior authorization?

Jump to this post


Replies to "I’m just curious how this works when someone travel 12 hours to be seen by Mayo..."

@AgentDarien I appreciate all of the good resources you have provided.

Teresa

I just got my book in today, can’t wait to read it!!Thanks for the suggestion.

I have a question about PD. As I have started reading this great book on PD it talks about all the other things which go along with PD. My mom suffers from all them. The nausea and doesn’t want to eat, depression, anxiety , frequent uti, but insomnia seems to be the worst. The book talks about the key to treating insomnia is adjusting the levodopa cardopa. I am just curious how anyone else is treated for the insomnia?

My neurologist put me on 1/2 escalating to 1  0.6 mg Clonazepam at bedtime and another 12 hours later I guess to keep the blood level reasonably constant and it helps my moderate anxiety. Been a couple weeks and no particular difference though I am still on

the half tab. Hard to move forward after the NY Times article the other day. 

I have also been through the sleep test and have a mouthpiece, no CPAP required.  Later retest showed I was fine with the mouthpiece and that is not the case.

Steve  

Hello @beverlyann

Here is a link to a video about sleep disorders and Parkinson's. This is from a symposium on PD that was sponsored by University of Michigan, https://www.youtube.com/watch?v=6s4A6HFkjGo&feature=youtu.be

I would like to hear from you again and know how you are doing. Will you post again?

Teresa

Thank you very much!! I really appreciate you!

Thank you! They tried that medicine but it didn’t do anything for my mom unfortunately. Thanks for your input!