Has anyone experienced incontinence after HOLEP surgery ?

Posted by azfox66 @azfox66, Mar 6 8:32pm

I recently had HOLEP surgery at the end of 2024. One of my main issues nine weeks later is incontinence or leakage. Been doing kegels but it still persists. Has anyone else experienced this and for how long?

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@elcorbs

I am 4 months post HOLEP and my incontinence still persists. It is really bad in the morning when I start moving around after waking up. I walk 3 miles then do my pelvic floor exercises. I then take a shower change my diaper and am mostly good for the rest of the day with that 1 diaper. If I could figure out what is causing all the morning leaks I would be about 90% normal. When sleeping I wake up 2 times to empty my bladder and it works perfectly. Maybe a tablespoon of urine in my diaper. I will continue to walk and do my pelvic floor exercises and hopefully overcome the morning leakage so my wife and I can do some traveling.

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I had HOLEP 3 years ago, very happy with the results. My prostate wasn’t causing high PSA scores, it was growing up into my b,adder which if left unchecked, could have caused urine to back up into my kidneys causing additional problems. I had a little incontinence right after the procedure, but it cleared up after about 5 weeks. I don’t have any problems with it today. I do take care to try and make sure all urine is vacated from the penis before walking away from the bathroom. And yes, I still get up 1-2 times a night to urinate. In light of what could have been the result had I chosen a different procedure, I don’t mind getting up to satisfy the urge.

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@kayak461

I had HOLEP 3 years ago, very happy with the results. My prostate wasn’t causing high PSA scores, it was growing up into my b,adder which if left unchecked, could have caused urine to back up into my kidneys causing additional problems. I had a little incontinence right after the procedure, but it cleared up after about 5 weeks. I don’t have any problems with it today. I do take care to try and make sure all urine is vacated from the penis before walking away from the bathroom. And yes, I still get up 1-2 times a night to urinate. In light of what could have been the result had I chosen a different procedure, I don’t mind getting up to satisfy the urge.

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I am now nearly 5 months post HOLEP. Just diagnosed with my 4th UTI post surgery. Never had a UTI prior to surgery. Urologist seems to think I am not voiding. I have an appointment Monday to check it out. My incontinence is now 95% gone. Tiny leaks every once in a while. It has been a tough 5 months. Now I have a referral to see a nephrologist. BUN was 38 2 days ago. Here we go again.

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I see several posts mentioning PT (physical therapy, I assume?). What sort of PT do they have you do for prostate surgery. Is it tightening of the pelvic floor / sphincter muscles?
I had aquablation, so a different procedure to HoLep, however I still have mild urinary incontinence, almost 5 months after the procedure. So, wondering if PT would help, hence my question. Thanks.

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@brucekn

I see several posts mentioning PT (physical therapy, I assume?). What sort of PT do they have you do for prostate surgery. Is it tightening of the pelvic floor / sphincter muscles?
I had aquablation, so a different procedure to HoLep, however I still have mild urinary incontinence, almost 5 months after the procedure. So, wondering if PT would help, hence my question. Thanks.

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Yes. Schedule the PT. You have nothing to lose and it could assist in the healing process and hasten it which is better than the leakage. Everyone heals differently but it could quicken the recovery.

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@azfox66

Yes. Schedule the PT. You have nothing to lose and it could assist in the healing process and hasten it which is better than the leakage. Everyone heals differently but it could quicken the recovery.

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Thanks, appreciate the advice.

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I want to follow up on my previous post about the nighttime incontinence I started having about a month after the HoLEP.

Now, about a month later, after having been very conscientious about the pelvic floor exercises, I have not been having any incontinence. I am not having urgency or frequency issues, either. I still dribble a little if I am not patient about waiting until it's all out, but not really any more than I have all my life.

I would emphasize how important the pelvic floor exercises are. In retrospect, I would have preferred that my urologist/surgeon started me in PT and those exercises even before the procedure.

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@kayak461

I had HOLEP 3 years ago, very happy with the results. My prostate wasn’t causing high PSA scores, it was growing up into my b,adder which if left unchecked, could have caused urine to back up into my kidneys causing additional problems. I had a little incontinence right after the procedure, but it cleared up after about 5 weeks. I don’t have any problems with it today. I do take care to try and make sure all urine is vacated from the penis before walking away from the bathroom. And yes, I still get up 1-2 times a night to urinate. In light of what could have been the result had I chosen a different procedure, I don’t mind getting up to satisfy the urge.

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3 months post holep. I have recovery guilt reading all the different effects that it has on other men.
I had no underlying health issues, no pre op damage from years of same. Only one section became a ball valve and completely cut off my ability to urinate. Due to age (51) and current good health , I recovered already. I’m back to where I left off with only memories of my previous life of 6 bathroom visits every night. Full bladder 24/7/365

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@lovethealoha

3 months post holep. I have recovery guilt reading all the different effects that it has on other men.
I had no underlying health issues, no pre op damage from years of same. Only one section became a ball valve and completely cut off my ability to urinate. Due to age (51) and current good health , I recovered already. I’m back to where I left off with only memories of my previous life of 6 bathroom visits every night. Full bladder 24/7/365

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That is awesome. I am 73yo and couldn’t empty my bladder. Like you I was up 6 to 7 times a night at times. Kidneys backed up and not functioning properly. HOLEP done 3 Dec 2024. So tired of doing pelvic floor exercises. Everything works perfectly (urinating) as long as I am sleeping or sitting and doing nothing. If I am up walking and doing things around the house I have a difficult time urinating. I just completed my antibiotics for my 4th UTI since surgery yesterday. Never had a UTI in my life till I had the HOLEP procedure. Not sure what is causing the UTI and neither does my urologist or PCP. I am very frustrated to say the least. Can’t travel or do anything without having diapers with me in case I need to change. Not exactly what would be going on 5 months after HOLEP. Most people are back to normal, no incontinence within 6 months. The path I am on, I don’t see that happening. So tired of wearing and buying diapers. Frustrated in Arizona.

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@elcorbs

That is awesome. I am 73yo and couldn’t empty my bladder. Like you I was up 6 to 7 times a night at times. Kidneys backed up and not functioning properly. HOLEP done 3 Dec 2024. So tired of doing pelvic floor exercises. Everything works perfectly (urinating) as long as I am sleeping or sitting and doing nothing. If I am up walking and doing things around the house I have a difficult time urinating. I just completed my antibiotics for my 4th UTI since surgery yesterday. Never had a UTI in my life till I had the HOLEP procedure. Not sure what is causing the UTI and neither does my urologist or PCP. I am very frustrated to say the least. Can’t travel or do anything without having diapers with me in case I need to change. Not exactly what would be going on 5 months after HOLEP. Most people are back to normal, no incontinence within 6 months. The path I am on, I don’t see that happening. So tired of wearing and buying diapers. Frustrated in Arizona.

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I’m deeply sorry to hear your recovery is going slow and painful. I experienced pain once when I drank soda 3 days after. It burned!! So back on water for a month and side juice Gatorade here/there. There’s no telling what changed in your body and IF it was due to damage from your condition or holep or both

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@elcorbs

That is awesome. I am 73yo and couldn’t empty my bladder. Like you I was up 6 to 7 times a night at times. Kidneys backed up and not functioning properly. HOLEP done 3 Dec 2024. So tired of doing pelvic floor exercises. Everything works perfectly (urinating) as long as I am sleeping or sitting and doing nothing. If I am up walking and doing things around the house I have a difficult time urinating. I just completed my antibiotics for my 4th UTI since surgery yesterday. Never had a UTI in my life till I had the HOLEP procedure. Not sure what is causing the UTI and neither does my urologist or PCP. I am very frustrated to say the least. Can’t travel or do anything without having diapers with me in case I need to change. Not exactly what would be going on 5 months after HOLEP. Most people are back to normal, no incontinence within 6 months. The path I am on, I don’t see that happening. So tired of wearing and buying diapers. Frustrated in Arizona.

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I'm in Arizona, I don't know if we are suppose to name doctors but I had Holep January 21 2025. I am 82 now and only have leaking at night. I wear the pull up diapers at night just in case but never have a problem during the day. What did they tell you at your 3 month follow up meeting?

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