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Anyone else dealing with Demodex Mites? What helps?

Skin Health | Last Active: Jun 11 8:14am | Replies (241)

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@alju

I have been reluctant to use the Xdemvy drops but my eyes for some reason lately are as itchy as they have ever been so I'm about ready to try them. I have the occasional sensation that something is in my left eye and moving around. My eye gets red and hurts when this happens. Also my vision is blurred ; this can last a few minutes or much longer, it is so distressing. Did you ever feel like something was moving around in your eye like that? Is the reason you didn't use the X drops because of the associated burning that is mentioned as a side effect?

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Replies to "I have been reluctant to use the Xdemvy drops but my eyes for some reason lately..."

I would definitely suggest you using the Xdemvy. While I have not, I have read that others have had improvement. I was finally prescribed it, but at that time had already started my oral/topical Ivermectin route and wanted to complete the course, and the thought of putting anything else into my eyes at that point was terrifying and most likely painful ( I was convinced that I might be the small percentage that experience side effects of stinging). Again, that method was my own attempt at resolution: after seeing seven different doctors and getting no help, usable information or relief, I purchased my own medication. This after reading every single thing I could find about this disease and moving forward with what seemed to be the clearest contender for success. What I had read about Xdemvy did not motivate me enough to discontinue the Ivermectin, as their own literature gives it a 1 in 2 chance of working to the degree that I needed: total remission. I had been living with excruciating pain, night and day, 24/7, with no reprieve. The last doctor I saw had the nerve to ask me what I found to be the worst part of having Demodex. Gee, I don’t know… the constant foreign body sensation? The constant stinging? The never ending burning? The crawling sensations? The extreme puffiness? The redness? The biting? The blurriness and fear that I was losing my eyesight? That I can find nothing or no one to help? The insinuation that I have parasitosis? Let me count the ways.
The only symptom I did not experience that I have read that others do is itchiness. I may have had an itch here and there, but nothing out of bounds. When I finally started healing I began to get itchier, and I suspect that it was from the die-off. I urge you to begin the Xdemvy if you haven’t already. As I previously wrote, I have it in my arsenal now if I ever change my mind or want to try something different now that I am on “the other side”. I say this knowing that it is a tenuous state, and always morphing. I keep a very tight handle on prevention as even though it looks as if I’m outwardly clear ( zero collarettes, no debris, no puffing, no redness), there are mornings I awake with foreign body sensation and just an “off” feeling. I routinely do a once or twice a week application of topical Ivermectin at night and I think that it helps and keeps things going in the right direction. I am convinced that this will be a lifetime commitment to my wellbeing and health, but I am willing to keep it up to ensure that I never endure the devastating effects of demodicosis again. As I mentioned before, this disease nearly caused my death. So, I should have added that to my earlier list of the worst things….
If anyone were to ask ME what I would take to try to get Demodex under control it would be Ivermectin. And not the general two week guidelines that most doctors use ( from their half-day medical training on this particular disease). Most well-versed and truly experienced physicians know that it takes 4-6 weeks of oral medication followed by topical use depending on grade of infestation. It took me 4 straight weeks of pills (after the first two-week round they gave me didn’t eliminate it— even though I told them that I thought I needed more because the math didn’t work for the mite life cycle) then about a week of topical to get to a place where it felt like there was some true healing going on. Again, everyone is different and these are my own methods that I used that have brought me to remission and a chance at normalcy. I am grateful to be in a place I took for granted— who thinks that this could ever be a possibility in their lives? It’s a long, isolating road, but know that others have your back. We understand. Cuz most doctors don’t or won’t.