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Amiodarone experiences

Heart Rhythm Conditions | Last Active: 14 hours ago | Replies (45)
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@dajasorenson

In response to the person that was wondering about a substitute drug for amiodarone they did come up with a drug called Multag it also has side effects but not as many and doesn't work as well as amiodarone. I have been on amiodarone for one year now and my eye doctor has noticed scares in both eyes from amiodarone. I see my heart doctor in two weeks, and we will discuss getting me off that drug. I will say it has kept me in sinus rhythm though for the year that I have been on it. I knew it could have some serious side effects but didn't know it could take up to a year to get it out of your system and during that time continue to have problems with your organs. No one should be on that drug long term.

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Replies to "In response to the person that was wondering about a substitute drug for amiodarone they did..."
amu45sin | @amu45sin | 5 days ago

Amu45sin here.
I totally agree. Prior to my ablation on 4/18, I
was on amiodorone 200 mg per day for 4 months.
A month ago, my eye doctor noticed
scars which had to be removed by laser. Coincidence? we both were on amiodirone, and got scars?

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jc76 | @jc76 | 4 days ago

@dajasorenson
I think it was me that asked why drug companies had not worked on a new drug that works as well as Amiodarone.

Amiodarone does work. It also worked for me. My PVCs stopped and my tachacardia stopped. Pace Clinc was shocked. But then like you I looked up the drug and wow I did not want to be on it.

The amiodarone was prescribed to me when in hospital after 5 shocks of my ACID/Pacemaker not my EP. So in discussion with EP we agreed to come off put even that has to be done slowy. And like you found out the toxicity to organs was going to last for a long time.
I had to have eye tests and labs done every year to look for toxic side affects and damage from the amiodarone. My last eye exam was at the 10 year mark after stopping amiodarone. He said I do not see any damage from the amiodarone and it is 10 years now so you do not have to be checked after this year. YEA!!!!

I think the low dose does not have the same serious side affects. However it is important and this comes from my EP that amiodarone is toxic and builds up in your system. I am on a different rympthm drug for my heart and is working. It has a very low toxicity but must be taken every 8 hours as leaves body very fast.

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