Let’s have a chat about what if anything works to improve your life wi

@kathieb48 From what I have researched and read it is so different for each individual and how they are medicating and exercising/moving. Stick with it! Don't give up! Your legs may feel weak today but, keep moving. My legs felt bad today and I decided to go for a fast walk. My legs hurt but didn't get worse as I walked. I worked my way through it and I made it 2 miles. Tonight I feel so much better! Stick with the pt, It is good for you! Good luck! I care!
Mike

That's more advice than I've gotten anywhere. Thank you! I'm hanging in there.

I have good days and bad days. On days I feel weak, I beat my brains trying to think about what in my diet or activities might have contributed. Sometimes it’s just overuse or fatigue with me. Sometimes I decide to take a potassium vitamin thinking maybe that will help. I do a little extra leg stretching while I’m sitting down. But I honestly haven’t cracked it - I find it runs its course and I have my good days back again.

That's unfortunate. Have you received any treatment(s) that have helped you? You mentioned chiropractic. thirty-five years is a very long time to be saddled with this condition.

@asteeleks, Good to hear. What are these treatments? Keep us informed as to your progress.

There is a Vero Health clinic in the Des Moines area that claims to treat neuropathy, but it looks like they take a chiropractic approach.

Will you say more what it is like? And what kind of practitioner delivers it?

Good morning, all!

It sometimes makes people upset when I say that I've learned that the best thing I can do for my PN is to be over and over remind myself that there's nothing under the sun that's going to make it go away entirely. Now I'm always quick to follow that by saying that my PM is large-fiber PN, so I'm blessed with having no pain, only wobbly/wobbly balance. I have tremendous sympathy for those of us whose PN brings excruciation pain.) My formula for dealing with my no-pain, large-fiber PN involves daily acceptance reminders, devoting some time most days (but not always every day) to a little balance work and leg-strength exercisers, shying away from talking medical stuff with my friends (unless they insist), sying Yes (or at least 'Check back with me, wiil you?) to most every opportunity that comes my way to be social, to expand, excite, and participate. I know you're thinking, 'Sure, Ray, for a guy with no pain, that's easy for you to say.'
Let me assure you, for me, a guy with no pain, living with PN is still hard as hell.

I wish us all success in living the best possible, happiest, most satisfying, pain-free life!
Ray (@ray666)

I don't think it's all due to that as it mostly went away for a time. Back in the Fall 2010 I went into retirement and had something of a sedentary winter. I remember mowing for the first time the next Spring. The day after mowing I felt devastated like I do now and I could hardly walk without discomfort. After that I pretty much felt that way after every time I owed after that. It's still the same except I've hired out most of the mowing. So in between I've had C1-C3 fusion, L1-L5 fusion and laminectomy, etc Things were better after that, but it seems like they reverted back. Walking or even being on my feet eventually takes its toll. I feel like I'm limited to X number of steps per day and if I use them all in the morning I'm screwed for the rest of the day. I'm reasonabl sure now that it's not a spinal issue. I'm at the point now where I may try the Metaxalone muscle relaxant as a last resort.

Anyone have any experience with this drug supplier?
https://www.costplusdrugs.com/medications/metaxalone-800mg-tablet-skelaxin/

Thank you for replying. I guess it does run its course. My fear is that the bad days stay but usually the next day is better. Thanks again, it helps to hear from others.