Let’s have a chat about what if anything works to improve your life wi

Posted by rybren @rybren, 4 days ago

Many if not all of us with idiopathic neuropathy have seen hundreds if not thousands of Dr’s for our neuropathy. So what really has improved your life? Be specific to help all. There are more companies selling us crap that they claim will help. Seems an honest discussion about what really has impact is needed. For me, I have stopped seeing specialist as it has not proven successful. Still see GP for Gabapentin RX.

So let’s get into the reality of what is working. For me it is not seeing more Dr’s. So let’s help each other with what has really worked for you so we can all learn. Maybe we can find some comfort for all.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Neuropathy can wear you out, that's for sure. One neuro doc told me that when you have things to do, try to get them done in the morning. As the day moves on, PN is tiring. Things involving activity I do in the morning and less active things later in the afternoon. Works for me.

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@njed

Neuropathy can wear you out, that's for sure. One neuro doc told me that when you have things to do, try to get them done in the morning. As the day moves on, PN is tiring. Things involving activity I do in the morning and less active things later in the afternoon. Works for me.

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I agree 100%, night time is usually the worst time of day for me. I used to love spending the evenings with my wife, watching something interesting, or something that won't insult our intelligence on TV. Now it's watching the clock to see when it's time to take my pills, which means getting out of my chair and walking to the bathroom at 8 pm, 9pm, and 10pm.
The pain in my joints and feet is always worse than it was earlier in the day.

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