Thank you for your extensive response. So happy that you are getting such awesome care there. Great information & confidence you have shared. Sounds like you have been through a lot. But the care you are getting sounds awesome. Also, so wonderful about your daughter being "invited" to do her graduate PT studies there too! Good physical therapists are truly a Godsend.
I will probably try and get in to the Mayo in Rochester as I saw Dr. Moore over 20 years ago for pain in my throat that I had for many years. At that time they found some abnormal pathology in my thyroid gland so Dr. Moore, took out half my thyroid gland and all went smoothly. I was impressed with the professionalism and the care too. At the time, I was told that the thyroid issue may have been a "red herring". That things may begin to show themselves more clearly in time. So now, so many years later, this vallecular cyst(?) shows up on an MRI (incidentally) while a neurologist is trying to figure out why I have neuropathy in the toes of both my feet. It does seem reasonable that I would go back to the Mayo so I hope they will accept me as a patient again. So after my "not the best experience" at MDA, I don't want to blame them for anything. They are following protocol and they have their processes. I just wished I would have seen the actual Dr. they scheduled me to see, for the entire appointment, not just 2-3 minutes at the end. We drove a very long way to see a specific doctor. And then, to see a trainee, was not confidence building. She said one thing to me and then when I got home and read the notes from the visit, it was different from what she told me when I was there. I blame myself too as I was so scared and anxious. I was really struggling emotionally. MDA did save my husband's life and took very good care of him. But my experience just wasn't that great...
IF you don't mind me asking, when you made your first Mayo appt. did you need a referral, did you just call them, or do it all online?
I so appreciate the sharing you and others have done on this site. It really makes a difference! Now, I just need to stop being so scared and get on with it.
Sending blessings & gratitude, Claudia