I too have AIP type 1. I did many rounds of predisone and every time they tried tapering off I would flare up again. Then the dr tried mercaptopurine which testing showed my liver could tolerate. Unfortunately it did not and I had to discontinue.
I am now on rituximab infusions and do them every 6 months. My labs are good and I have been in remission for over 2 years.
There really aren’t any that I had to make as I am diabetic and already eating smaller meals watching carbs and sugar intake. I have heard that smaller meals is recommended to not overwork the pancreas but I don’t know if that would be a sure thing or not.
Connect
Connect
Like
Helpful
Hug
Can you tell me the lifestyle changes to be made if u hve AIP?
-
Like -
Helpful -
Hug
1 ReactionThere really aren’t any that I had to make as I am diabetic and already eating smaller meals watching carbs and sugar intake. I have heard that smaller meals is recommended to not overwork the pancreas but I don’t know if that would be a sure thing or not.
-
Like -
Helpful -
Hug
1 Reaction@ethanmcconkey